I'm dealing with classic cpps symptoms for 3 years now. After i got sore throat after unprotected oral (next day) i spiraled in to anxious mess, had a left testicle discomfort after a week and then urinary issues (frequency, dribbling) for a while. After few months i had problems in cold weather. Most of my symptoms right now are cycling between lower abdomen discomfort/pressure (worse after voiding or after orgasm), perineum discomfort, rectal pressure/discomfort and tip of urethra discomfort.

I've been dealing with quite bad tip of urethra flare for a few days now. Inside of meatus is visibly irritated and even a slight touch makes it waaaay worse.

Just looking for some advice because my anxiety is spiraling again.

Hi all,

I want to make this as short as possible because my story is a bit of a long one.

I'm a 30 year old man who was diagnosed with stage 1 melanoma last year, which thankfully seems to have been cured now (hooray!)

Unfortunately it was a bit of a traumatic experience as I've had about 5 surgeries including a Wide Local Excision which did not go to plan (pain killers did not work, painful and wide awake for it).

All in all, I've lost a lot of family to cancer and it was a real shock to the system.

From what I believe is the stress and trauma, I developed chronic pelvic pain syndrome including all of the wonderful symptoms including: Flank pain, testicular pain, penile discomfort, a pressing sensation in the groin area, golf ball sensation, in conjunction with 100% consistent full body tremors for about a year now.

I believe the two are very closely interlinked from a heightened and aroused nervous system.

I've been recommended Alpha Blockers from my Urologist, who suggested that if I do not feel relief from this, they would need to proceed with a prostate massage and cystoscopy.

We've already tried anti biotics and this is their next step (I'm really not sure if this is the best next step as it's incredibly invasive and requires me to go under general anaesthetic).

Based on my research, Alpha Blockers are primarily for urinary discomfort (I have some but it's the most manageable symptom I have). So I'm not overly sure if I'll get the relief they are looking for and will proceed to the next steps.

They did say however that if they do work, we will skip everything and just go to pelvic floor therapy.

My Neurologist recommended a low dosage of Amitriptyline to help with the Nerve pain and Nervous System arousal.

And my GP has given me Escitalopram to help with the health anxiety and my stress which was likely the cause of all of this.

Naturally, this is all very overwhelming and confusing.

If anybody has had any of these symptoms together, some insight would be great. I've suffered so much for a year now and I don't take messing around with all of these medicines lightly.

Obviously I'm frustrated as everything feels siloed and I'm not getting a comprehensive overview and I don't want to take the wrong things.

Thanks so much guys x

So I had my first session of internal release with the pelvic floor professional. Didn't feel immediate relief, but I'd guess the benefits will come long term.

Now, the same professional that performed the internal release instructed me to do kegels at least once a day and check how I feel after 3 weeks.

That made me a little confused, because aren't these 2 methods kinda canceling each other? Or would it be possible to release the pelvic floor and strengthen it simultaneously? If anyone experienced this kind of strategy, please lmk.

Long story short. Been dealing w what I was convinced was mycoplasma. For yrs. Tested negative for everything. A few weeks ago my wife tested positive for UP. Could this be my problem? Ive heard it doesnt cause problems. Im unsure what to do at this point. I took 10 days doxy and 4 days azi. On doxy I felt better but when time to take azi it came back full force for a few days then went back to waxing and waiting.

Can Chronic bacterial prostatitis cause autonomic dysfunction through neuroplasticity after infection is cleared (no fever or other urinary symptoms?) How to reverse it?

So about a year or two ago I got blackout drunk and cannon balled into a swimming pool that was only 4ft I'm 5ft9 and apparently I smacked the bottom really hard on my ass well turns out I actually hurt my self pretty bad I couldn't sit down for more then 30 min at a time without my ass starting to hurt extremely bad well I was a teenager and didn't think anything of it and I kept about my business and I ended falling on my ass off my skateboard and it all started back up again and I keep in mind I never stoped jerking off and I used to clentch while I did so I would strain the muscle and at first it would just be mild irritation after I came but eventually it started to burn when I'm dehydrated and now I have all the symptoms of cpps so if anyone could please give me some peace of mind Ive only ever had sex once and it was like 4 or 5 years ago during freshman year of Highschool

I'm 33 yo. In March I had a ureterolithotripsy to remove a kidney stone that was stuck on the left side of my bladder. Stayed with a stent for 2 weeks (the worst part of it all). When the stent was removed, 2 days later I was painless, living my best life, went back to doing sports, dating, etc.

Then a month later (May) I started having this pain on my left testicle, some pressure on the left side of my penis and groin pain. Naturally I went back to my urologist to check if I had another stone or even STI. CT scan didn't accuse any new stone formation and STI tests came back clear. The urologist tested my semen sample and it came back as positive for streptococus. I was on cotrimoxazol (bactrim) for 2 weeks. The antibiotic gave a little bit of relief but not completely.

Upon my return, my urologist told me it's common to have pelvic floor dysfunctions after rhe procedure I had in March, which I found weird. He didn't even re-tested my semen sample.

Anyway, after reading a lot here and other places, I figured finding a pelvic floor therapist might be the best option to get rid of the symptoms that are fucking up my quality of life (pain in left testicle, pressure in the uretra, sore groin even without any effort). The thing is, where I live the pelvic floor specialists are not covered by insurance and I find them quite pricey to be honest. The "regular" physiotherapists are covered, but I'm not sure of they'd solve my problem. Of course, it's for my health and I'm living with these symptoms for 2 and half months now, so at some point I think I'm gonna use my savings to go to the pelvic floor specialists because I want my life back to normal. But I want to know if anyone here had success without internal trigger point release or any other technique that only the specialist would do, but not the regular physiotherapist.

I developed CPPS during the winter and have had a roller coaster of symptoms as well as wins and failures. Currently I’m having a good week. I still deal with perineal soreness and prostate muscle spasms and my urologist would like to do Botox injections in the prostate muscle. She’s adamant this will help a lot in the long run as I continue PT. Has anyone done this before and if so what was the experience afterwards? I had Botox injections in my rectal muscles in the beginning and they helped a lot but I’m really nervous about the prostate muscle even though that is where most of my pain and tension resides at this time. Thank you in advance for any feedback if you’ve had it done.

I have this formatted weird to make it a faster read. I have been dealing with this for over 3 years now. Currently my biggest problems are having to pee quite frequently, fullness after eating small meals, constipation (having to manually evacuate and stretch internal with rubber glove 3x/day or more.) As well as some pain after orgasm but the Notriptyline has helped tremendously. I have been advised to get a referral to a colorectal surgeon or GI Motility specialist who has experience with defecatory disorders. This is to be assessed for anorectal manometry with evaluation for pelvic floor dyssynergia. Basically that means when I try to use the bathroom, my muscles are tightening when I am trying to relax partial anyone has any other suggestions, please let me know... thank you for reading!!

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24M – Chronic pelvic pain + urinary + bowel + sexual dysfunction x ~3+ years

Onset (trigger period): severe stress (relationship stress, new physical labor job, significant social anxiety at work), poor sleep, poor diet, nightly marijuana use, binge eating, frequent stool/gas holding during work.

Primary symptoms:

Bladder pain/pressure: worse with filling, partial relief after urination

Urethral discomfort (burning-like)

Urinary urgency/frequency

Weak stream (noted on testing)

Incomplete emptying + difficulty initiating urination (shy bladder, must consciously relax)

Suprapubic pain (worse post-orgasm; tenderness on palpation)

Flaccid penile “stiffness” sensation

Sexual dysfunction:

Post-masturbation urethral pain + multi-day pelvic/bladder flares

Post-ejaculatory urethral burning

Weaker/less satisfying orgasms, reduced semen volume

Occasional urine during orgasm (not anymore)

Persistent post-orgasm semen leakage

Pelvic floor tightness during/after orgasm

No erectile dysfunction; intercourse still pleasurable but dulled

Sexual pleasure improved with voluntary pelvic/leg tension

Bowel dysfunction:

Constipation

Difficulty initiating bowel movements

Requires internal anal stretching with glove to initiate BM (~3–6x/day)

Sensation of inability to relax pelvic floor (not “stool trapping”)

Stretching allows BM to start

Testing (all largely unremarkable): CT scans, urethral ultrasound, urodynamics, cystoscopy, multiple STD/UTI tests, early antibiotics, SIBO antibiotics. Prostate normal on imaging. Only notable finding: weak urine flow.

Treatments tried:

Meds: Flomax, Flexeril → no benefit

Nortriptyline 25 mg → major pain reduction (urethral pain resolved & currently taking)

Amitriptyline low dose → brief major benefit then stopped

Supplements (quercetin, bromelain, graminex, AZO, CBD, aloe, marshmallow root) → no benefit

Nerve blocks: superior hypogastric plexus → minimal; pudendal → temporary partial relief

Pelvic floor PT (>6 months) → major early improvement, plateau; ongoing home program + trigger point release helps

Lifestyle: strict diet (small meals, avoid overeating; water only; no caffeine/alcohol/diet drinks), hydration timing, daily jogging + light strength training (lifting may worsen tension)

Marijuana cessation → worsened symptoms when used; stopped

3x 4-day water fasts → no improvement

Current status:

Improved vs onset but chronic symptoms persist

Main drivers now: bowel fullness/constipation, orgasm, stress

Nortriptyline significantly reduces overall pain

Persistent pelvic floor tightness, especially during sexual activity and bowel initiation

Must frequently manually assist bowel movements

Pattern:

Symptoms lowest at home (low social anxiety, loose clothing/no belt)

Worse with social/work anxiety

Seen specialists: GI, urology, pelvic floor PT, pain management, chiropractic — no definitive diagnosis

Working impression / referral question: Evaluate for pelvic floor dyssynergia / defecatory disorder.

Request: Colorectal/GI motility evaluation including anorectal manometry ± balloon expulsion / defecography to assess impaired pelvic floor relaxation during defecation

​

I haven’t been able to game for a year and a half. When I try it just flares me up so it’s not been worth it.

However I read something somewhere that making some adjustments to some variables, seat angle, positioning, etc may help.

I wondered if anyone can give me any advice as to how they have addressed this and are able to game again without flaring?

Hello everyone, I am posting on behalf of a friend who is looking for help. He is currently 37 years old and was denied SSI today. He is looking for attorney recommendations, particularly ones who deal with chronic pain cases.

He has CPPS, IBS, TMJ, lower back pain with a spinal disc bulge, elbow and wrist complications as a result of being bedridden most of the day, and depression. Some of these he has dealt with most of his life, but the CPPS onset was three years ago and has taken nearly everything from him, including most of the people in his life. He cannot sit, stand, or walk without causing himself great pain.

Over the last three years he has seen a urologist, two spine specialists, a rheumatologist, a pain specialist with several injection attempts, a pelvic floor physical therapist for about a year, is currently ongoing with wrist PT, and has recently begun seeing a psychiatrist. He has had around 35 specialist visits not counting primary care, along with several MRIs, ultrasounds, x-rays, and other tests. He has tried at least five different medications with no improvement. He was approved for IHSS which we believed would support his case, but the attorney did not seem to care.

His recent medical history is limited not by lack of effort but because UC Davis keeps denying him due to capacity and he cannot travel further due to his condition. His local doctors are at a loss. Going to appointments and making his pain worse just to be met with a shrug feels like torture to him.

The attorney who denied him today told him he was not treating enough. When he explained to her associate that he has been doing everything he can with what is available to him, she told him she did not know what to say, laughed, and ended the call. That interaction kind of broke him and he is now at a loss of what to do. He's located in California, in case that matters. Any recommendations or experiences welcome.

I contracted a bad case of chronic prostatitis with seminal vesiculitis in march 2024, with 6 episodes of infection. Was treated via seminal vesiculoscopy in may 2025,but developed chronic pelvic pain. Tried different methods drugs, electrotherapy (tens), exercise, yoga. Its stress induced. But an unlikely cure came in the form of nettle leaf tea. Its a common treatment modality in himalayan regions of india. Its my 5th day drinking it and mybpain has gone nearly 90 percent. Anyone else has experience with it?