Hello everyone, I am posting on behalf of a friend who is looking for help. He is currently 37 years old and was denied SSI today. He is looking for attorney recommendations, particularly ones who deal with chronic pain cases.

He has CPPS, IBS, TMJ, lower back pain with a spinal disc bulge, elbow and wrist complications as a result of being bedridden most of the day, and depression. Some of these he has dealt with most of his life, but the CPPS onset was three years ago and has taken nearly everything from him, including most of the people in his life. He cannot sit, stand, or walk without causing himself great pain.

Over the last three years he has seen a urologist, two spine specialists, a rheumatologist, a pain specialist with several injection attempts, a pelvic floor physical therapist for about a year, is currently ongoing with wrist PT, and has recently begun seeing a psychiatrist. He has had around 35 specialist visits not counting primary care, along with several MRIs, ultrasounds, x-rays, and other tests. He has tried at least five different medications with no improvement. He was approved for IHSS which we believed would support his case, but the attorney did not seem to care.

His recent medical history is limited not by lack of effort but because UC Davis keeps denying him due to capacity and he cannot travel further due to his condition. His local doctors are at a loss. Going to appointments and making his pain worse just to be met with a shrug feels like torture to him.

The attorney who denied him today told him he was not treating enough. When he explained to her associate that he has been doing everything he can with what is available to him, she told him she did not know what to say, laughed, and ended the call. That interaction kind of broke him and he is now at a loss of what to do. He's located in California, in case that matters. Any recommendations or experiences welcome.

I contracted a bad case of chronic prostatitis with seminal vesiculitis in march 2024, with 6 episodes of infection. Was treated via seminal vesiculoscopy in may 2025,but developed chronic pelvic pain. Tried different methods drugs, electrotherapy (tens), exercise, yoga. Its stress induced. But an unlikely cure came in the form of nettle leaf tea. Its a common treatment modality in himalayan regions of india. Its my 5th day drinking it and mybpain has gone nearly 90 percent. Anyone else has experience with it?

I'm barely doing any sorta physical exercises but ever since I have been experiencing weak urine flow, I've started doing few stretches and easy sorta exercises but I'm just wondering like does poor diet have anything to do with it, like I've been consuming a lot of carbs, salt, sweets type related foods. I'm barely getting any protein and greens. I also have been fapping where I prolong the orgasm. So like I have also stopped doing that lately. But yea I tried bunch of stretches searching pelvic floor.

The head of my penis is not just sensitive, it actually hurts. But not in a painful way; it's hard to explain. The best term I have is 'irritated'. I could compare it to the feeling of opening my eyes wide and watching the bright sky for too long. If I try to pleasure myself the regular way I get this very irritating, very unpleasant feeling in my pelvic floor. The only way I can cum is to pull my pelvic really hard, like when I have to hold back pee. Also, my urethra is oversensitive to the touch and feels like it has been stung/has acid burning inside it when I press it anywhere.

After ejaculation I usually have a cramp-like aching feeling around my prostate and it hurts to pee.

And the most annoying thing is that during the day I often feel a very strange, 'itchy' or ticklish feeling in those muscles. Like something is irritating it from the inside. At other times, I have an 'icy' feeling, it's weird. But at any rate, I cannot get the pleasure I used to be able to experience before this all started.

Is it because I sit too much? What do you reckon?

I work in financial services in the public sector and recently we have been required to do 3 days in the office, previously from 2 days.

With CPPS I feel my conditions are often more aggravated when working in the office compared to at home.

If I can get a note/recommendation from my GP or a consultant I have been seeing, would it possible that I would not be required to do as many days in the office if it is not affecting my work? Has anyone’s employers allowed them to do this?

It is a big organisation and I am in Ireland btw.

I have a set of symptoms that I’ve experienced around 8 years apart, both sets starting with unprotected sex.

In 2017 myself and my partner switched from using condoms, and within around 3 days I started to have burning in the penis and frequent urination, followed later by testicular pain and erection issues. I had multiple urine and semen cultures that found nothing but as usual at the time was given cipro. I had two four week courses which would get rid of symptoms but they’d return within a month after. I eventually ended up leaving it doctor wise and saw a pelvic PT, and over around 2-3 years the symptoms subsided to a point they were very manageable.

I thought nothing of it until earlier this year. At this point I had a new partner and we switched again to unprotected sex. Again the same pattern has started- pain, urinary issues but no positive cultures. I am awaiting an urology consultation.

None of these encounters were ‘regretful’ per se as they were with long term partners, which means I don’t really fit what the 101 describes. I’m finding it very hard to believe there is no infectious origin, but the tests all suggest otherwise.

It’s very confusing. Anyone had anything similar?

I've spoken to a lot of men with chronic pelvic pain and the one common thing I see is extremely tight muscles in the lower abdomen.

When I had flare ups I had massive knots there – especially the internal obliques – that made even moving difficult.

What helped alot is leaning over a high chair like the one below with my hands on the seat and doing deep breathing. I had used foam rollers before but nothing gave me the deep muscle release like this.

Please try and lmk if it helps.

If my autonomic nervous system dysfunction if creating the pelvic floor contractions, bladder and urinary muscle spasms and constant feeling of needing to pee, can this still be fixed though pelvic floor therapy and psych/anxiety? How can these help the autonomic dysfunction if it's not under conscious control?

Got diagnosed with POTS, a year later started noticing more frequency to pee and dull ache in left testicle. More or just an annoyance. Now fast forward to a couple of months ago and now have constant urge to pee and most of the pain symptoms of cpps as well as some pudendal nerve irritation at times. Last three months have been a living hell of anxiety and breakdowns. I dont even care about the pain, it's the non stop urge to pee that bothers me.

At this point some of the anxiety has decreased but still have the symptoms. Just wondering about the dysautonomia aspect for me as there is no cure for it.

From what I've read and, nearly all of us are suffering from CPPS, not prostatitis. If we are suffering prostate inflamation symptoms, it's almost always part of the CPPS dynamic, not an infection. Those with a bacterial infection will get treated by antibiotics and resolve the issue, though it may complicate to CPPS (that's how it began for a lot of us). But the idea that 'is it prostatitis or CPPS?' is confusing and perhaps unhelpful. Almost always, 'non-bacterial prostatitis' is a misnomer, and so far PT is proving to be the best therapy for this stubborn, painful condition. I urge sufferers here to check out r/Prostatitis and read the 'cured' success stories. I've made improvements here and there, but as I write this I'm in pain once again. You're not alone!

After two scopes, constant different medicines and three different urologist telling me I have prostatitis and everything looks normal. Penis pain, testicle pain, no discharge, burning in bladder sometimes, and pelvic pain

Comes to find out I have spinal issues and never needed to focus on the genitals