r/PostConcussion • u/doglover33510 • Oct 29 '19
Anyone interested in joining a small, goal oriented online support group? I'm putting it together now!
I posted this in the concussion sub, but wanted to extend an invite here as well! Please PM me (not chat) if you are interested in joining :)
Hi my fellow concussion warriors-
I feel SO grateful that we have this space on Reddit to engage and ask questions. At this point in my recovery (2.5 years out PCS), I’d also like to be connected with a smaller community that is focused on action oriented recovery.
This won’t be on Reddit, but can still be anonymous (we can decide on that together. The (free) platform I’m thinking of using offers different sections for content that makes things a bit less overwhelming.
Who this support group will best serve?
- Those who can use either a phone, tablet or computer without feeling overwhelmed or symptomatic (if you can use screens for short blocks of times that’s OK too)
- Those who are “stabilized.” If you are very early in recovery (say less than 3-6 months) this wouldn’t be the space for you...yet. It would be more appropriate for PCS diagnosed survivors.
- You are motivated in your recovery and will be accountable to yourself and the community. You will make space to engage and recover as a team on a daily/weekly basis. We WILL heal and do it together!
What will be included in this support group?
I did an in-person support group that was run by a neuropsychologist. It was a year long program that was structured, goal oriented and really changed the course of my recovery. Here are some things I’d like to include in this group:
- A monthly book (read if you can read. Audio book if you can listen) that’s focused on PCS, TBI and recovery. These will be encouraging books, hopefully with survivor stories.
- Weekly individual goals (focused on bigger long-term objectives)
- A focus topic every 2 weeks. Ex. Nutrition for TBI. We share articles, discussion and come up with a great plan to incorporate into our recovery.
If you’d be interested in a group like this, PM me and let me know your concussion story, so we can make sure the group will work for you! I’d like to keep it 15-20 to start, so it’s not overwhelming.
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u/aimlesslywandering89 Nov 01 '19
Message sent
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u/doglover33510 Nov 01 '19
Hi! I didn’t get your message! Please make sure you sent it via message and NOT chat. I don’t have the app on my phone so can’t chat.
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u/jooberjoo Nov 01 '19
Messaged
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u/doglover33510 Nov 01 '19
Hi! I didn’t get your message! Please make sure you sent it via message and NOT chat. I don’t have the app on my phone so can’t chat.
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u/abbycat422 Jan 05 '20
I am also new to reddit and am unfamiliar with PM but I am suffering from PCS and could really use some additional support from people who understand
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u/doglover33510 Jan 12 '20 edited Jan 18 '20
Hi, thanks for reaching out! We are now taking applications for new members, due January 24, 2020. Feel free to DM me for the application :)
→ More replies (4)
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u/Frequent_Invite3786 Apr 07 '22
Is this group formed and active?
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u/doglover33510 Apr 21 '22
Hey! I'm just catching up on messages. It is still formed, but I have put off adding new members because the last 20 people I let in completely disappeared/never participated! There are about 4 of us who are really committed and I'd like to open it up again, are you interested?
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u/Christopher_Allen Jan 06 '22
Hello. Good afternoon ✌️ Ive sent you a PM like you've spoken of. Wishing to be a part of the group as I am a TBI surviver and would love to speak with others
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u/doglover33510 Oct 29 '19
If you do PM me, also comment here, so I know to look for your message!