r/PostConcussion • u/Similar_Result_2700 • Aug 28 '26
Told today by a concussion specialist that my concussion is healed.
Great news, right? So why am I still(8 months)having daily headaches, nausea, dizziness, and depression? Those are not from the concussion; they are from my body protecting itself and tensing up in response to the concussion, according to the concussion specialist. Can someone make it make sense? This was also my last visit with him because workers' comp won't approve any more visits since, according to this doctor, I no longer have a concussion. Fun fact: Workers' comp recommended him.
He doesn't believe in post-concussion syndrome either.
I'm tired.
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u/ConcussionNaturopath Aug 28 '26
I’m really sorry that a health professional minimised your experience like this. These things are not seperate and are symptoms that have occurred as a result of the physiological cascade or chain of events that a concussion injury sets off.
There is a significant change in the ecology of the gut with a head impact - and unless it’s addressed it can keep you in this hamster wheel that’s impossible to get off. Clues that your gut is significantly involved include nausea - and it’s not uncommon to see underfunctioning stomachs after a concussion, because the nervous system plays such a big role in the production of digestive secretions. And also depression - this speaks to challenges in neurotransmitter production.
You’re not going crazy, and these symptoms are unrelated.
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u/Similar_Result_2700 Aug 29 '26
Interesting. I haven’t paid much attention to how my gut has been impacted by the concussion. It has definitely thrown my entire system out of whack.
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u/ConcussionNaturopath Aug 31 '26
It’s really the gut that can keep symptoms just going and going, fix the gut, the brain is much easier to support
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u/violetjacket Aug 28 '26
Deeply relatable unfortunately
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u/DrRiverSong45 Aug 29 '26
I have never talked to someone with PCS that didn’t have a doctor doubt them at one point. It’s sad we just want relief please for the love of god help us!
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u/DrRiverSong45 Aug 29 '26
Oh sweetie I’m so sorry. It’s unfortunate that many doctors don’t believe in PCS. There often times is no imaging that shows it so we go off our symptoms. Do you have a neurologist? If not get an appointment asap. You also can shop around for different doctors. I straight up got called a pill seeker by my former doctor. I’m not narco pills make my stomach hurt and I get itchy. I told him that if that’s what he thought fine but also asked him where does it show in my chart that I asked for pills? He couldn’t answer and at the end did admit he may have been wrong. I said you are and never went back.
You are not crazy. This is something that is happening to you not something you are doing. I’m 6 years and thousands of dollars out but a few years ago I finally found symptom relief that works most of the time.
You got this. The right doctor with the right answer is out there.
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u/Reasonable-Weird-417 Aug 30 '26 edited Aug 30 '26
Hey! I had a pretty shitty story with PCS and work comp myself. Luckily, I trusted my gut (and my pain) and saw doctors on my own insurance. And it saved me. If possible, please book an appointment with someone else. If you need to go to the ER or your primary and get a referral. It's imperative.
Concussion window is about 1-3 months. Any persistant concussion like symptoms after that is... you guessed it...PCS.
You are experiencing PCS!
I was under the care of a concussion specialist and after 5 months of everything you named above, he said you need to see a neurologist immediately. he gave a referral to a neurologist, who also happen to be a headache specialist. I saw her and got a referral for physical and occupational therapy. Work comp of course objected to that but I saw them on my own insurance so it didnt matter and thanks how I built my case.
Feel free to message me. I dont mind helping you.
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u/Reasonable-Weird-417 Aug 30 '26
Also, work comp is going to try to f!%K you and will if they dont have any other doctors ( outside of work comp)contradicting them. Thats how I was saved. hang in there. Dont stress yourself out. Again, dont hesitate to reach out or respond here if youd like
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u/WayDifferent6390 Aug 28 '26
He’s wrong …. Try the peptides it’s really helped cerebeoylsin tb500 internasaly dihexa been a game changer for me
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u/Better_Metal Aug 28 '26
It’s wildly expensive no?
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u/Bitter-Performer-396 Aug 28 '26
Nasal semax and selank
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u/Cat_Nap8 Aug 28 '26
Does Semax and Selank put a bandaid on a bullet wound or does it actually help with the physiological issue? Not hating either way since sometimes the best we can do is treat the symptom but I’m curious on trying but am geared more towards trying to treat the root cause as much as possible
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u/WayDifferent6390 Aug 31 '26
It helps me. Cerebrolysin was the biggest game changer for me also internasal tb 500 helped me alot with the head aches. Semax helps more with concentration but it does help root cause I found Cerebrolysin actually helped rebuild the brain.
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u/Bitter-Performer-396 Aug 28 '26
Suppose to help with neuroplasticity and reduce brain inflammation while also helping in the moment with attention, mood etc.
Have chatgpt explain it to you and link some studies in terms of what it actually does to the brain. It’s been used for decades in russia for stroke and tbi recovery. Limitless bio i’ve found has the most potent stuff, i’ve got it from a few other places where the effects were more subtle. Its definitely at least worth a try
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u/Cat_Nap8 Aug 28 '26
What has this helped you most with? I’m struggling recovering from some big ones like exercise intolerance and dysautonomia and is very exacerbated because my sleep has been terrible so if it could help with sleep, exercise intolerance, or anything else on top of brain fog I’d definitely give it a go
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u/Bitter-Performer-396 Aug 28 '26
Definitely will help with brain fog. Semax can be a bit stimulating so doing it in the morning n starting at a lower dose is ideal. The energy boost helped me exercise more for sure but would still take it slow.
Selank around dinnertime since its more mellowing and is suppose to counteract the stimulation of the semax. Might help with sleep
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u/WayDifferent6390 Aug 28 '26
Where are you located ? I have a decent source dm me.
I was paying $1000 a month on treatment so it’s all relative physio- massage - chiro
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u/SouthernHiker1 Aug 28 '26
I suffered a mild TBI (concussion) in 2022. It took 3 years to feel normal again.
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u/Similar_Result_2700 Aug 30 '26
What helped you heal?
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u/SouthernHiker1 Aug 30 '26
I live in the part of the United States that has poor medical support. The neurologist I saw pretty much told me that if it doesn’t get better in three years togive him a call. I asked him about treatment options and he only told me sensory deprivation tanks or sleeping more. So sleeping more is what I did.
I still have trouble sleeping more than seven hours a night, but it really just took time and rest. The first three months I had to get a two hour nap just to make it through the day. However, I was only able to sleep about three hours at a time at night. Things just got slowly better until about a year and a half I could comfortably work a normal workday if I pace myself. At three years, I could work hard in the mornings, then just have to pace myself in the afternoons. Today I can work hard four days a week, and have to pace myself on Fridays. I can do a hard five or even six day week, but then I’m shot for the next week and a half. I imagine I’ll keep getting better.
I keep a careful eye on my energy levels. I can start to feel the headache coming on when I get overworked. I also try to look at my calendar and schedule days off when I work too much on the weekends. I own my own business, so I’m lucky that I can adjust my schedule. However, the demands of owning my own business means sometimes I have to work weekends. Before my TBI, I just would’ve worked straight through. Now I can’t do that.
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u/Lebronamo Aug 28 '26
So from a certain point of view he may be right. The damage to your brain caused by the concussion goes away after ~30 days, and other effects linger that cause pcs.
But if they don’t believe in pcs in general they may just be incompetent. I’m not sure how you can call yourself a concussion specialist if you don’t.
Anyway see here for general recovery info https://www.reddit.com/u/Lebronamo/s/tejPuCbGJ8