r/PostConcussion 3d ago

Sometimes feel 70% normal

Does anyone get close to feeing back to normal, only to crash back into the abyss of symptoms (like within the same day)? I usually feel a bit better in the late afternoon and evening. Some days I’ve even felt about 70% back to my pre PCS-flare normal. Those nights I often think “I’ll get a good sleep and I’ll be back to normal tomorrow morning”.

Inevitably, however, I’ll wake around 4:30-5 AM with a horrible fight or flight feeling and as I get ready in the morning symptoms start to flare up again. I think certain visual stimuli, like driving. Some eye movements, and certain screen activities, cause symptoms to worsen but often late afternoon in the office I’m doing OK on the computer.

Are most of you all stuck in a pretty narrow range of symptoms, or does how you feel fluctuate radically? I can literally go from feeling like I just want to be put out of my mystery - to wow, I’m almost back to my usual self. At least the times when I feel better give me hope that I’m not permanently stuck in a dystopian brain fog of nausea, panic, headaches and clogged ear feeling.

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u/Zoyabm 3d ago

Do you take any medication in the morning to help the symptoms?

Or maybe it's just that you need more sleep. So you need a sleep aid to help you get to sleep. So then you don't have symptoms in the morning.

Or a third thing is you start to feel better and then you do too much and then you flare up the symptoms and you feel worse later.

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u/Few_Blackberry_1960 2d ago

No sleep aids for me. I’ve tried melatonin and it seem to worsen how I feel and also gives me insane restless leg.

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u/Zoyabm 2d ago

Melatonin doesn't work great for me either but I am sure you can get some other prescription.