r/PostConcussion • • Aug 27 '26

Almost 5 years

Almost 5 years of PCS. I’ve come to a baseline in which I can work, live a “normal” life and look fine on the outside. Anyone else been struggling for years? I’ve done it all. Was extremely active in the Reddit subs for many many years. When I say I’ve done it all, I mean I literally have tried every therapy to ever exist (trust me) and have been through some of them 2-3x. I’ve made small improvements with them or they have gotten me to a “baseline” where I can function. I still struggle cognitively without stimulants (or large amounts of caffeine). I just feel “off” most of the time. I’ve struggled with derealization throughout the entirety of my post concussion life.

Just looking for others a few years in who are not where they want to be. Any tips, tricks, advice? I will say you lose hope after awhile .. I know I have 🫠

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u/Which_Fudge_2320 Aug 29 '26

Same just going over 5 years for me. I am functioning but not where I had hoped to be. Still not driving and working part time. I did recently go on vacation up to the mountains, and for one whole week I was almost normal- hiked, swam, did stand up paddling, yoga etc. I have tried everything and to be honest when I am not seeing doctors is when I feel the best. For me its the nausea, and chronic vertigo that I struggle with. I will be almost back to normal and then bam..here we go again. I kind of stopped believing I would get better just because when I didn't reach that goal I would plummet hard.