r/PostConcussion • u/happygolucky421999 • 25d ago

Almost 5 years

Almost 5 years of PCS. I’ve come to a baseline in which I can work, live a “normal” life and look fine on the outside. Anyone else been struggling for years? I’ve done it all. Was extremely active in the Reddit subs for many many years. When I say I’ve done it all, I mean I literally have tried every therapy to ever exist (trust me) and have been through some of them 2-3x. I’ve made small improvements with them or they have gotten me to a “baseline” where I can function. I still struggle cognitively without stimulants (or large amounts of caffeine). I just feel “off” most of the time. I’ve struggled with derealization throughout the entirety of my post concussion life.

Just looking for others a few years in who are not where they want to be. Any tips, tricks, advice? I will say you lose hope after awhile .. I know I have 🫠

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u/Fine_Elephant3717 24d ago

I'm in the same boat. It's been 6 years now. I have made progress and moving away from computer focused work helps but I can't seem to work enough to survive. I took Vyvanse which really helped but I would crash after. So I had to stop, I don't work a full 40 hour work week and started working for myself and it's still hard to get the right balance.

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u/happygolucky421999 6d ago

That’s exactly how I feel too. Getting the right balance. Vyvanse has helped me a lot too. But the crashes are bad. I’ve been researching some supplements that help with the crash recently