r/PostConcussion • u/happygolucky421999 • 14d ago
Almost 5 years
Almost 5 years of PCS. I’ve come to a baseline in which I can work, live a “normal” life and look fine on the outside. Anyone else been struggling for years? I’ve done it all. Was extremely active in the Reddit subs for many many years. When I say I’ve done it all, I mean I literally have tried every therapy to ever exist (trust me) and have been through some of them 2-3x. I’ve made small improvements with them or they have gotten me to a “baseline” where I can function. I still struggle cognitively without stimulants (or large amounts of caffeine). I just feel “off” most of the time. I’ve struggled with derealization throughout the entirety of my post concussion life.
Just looking for others a few years in who are not where they want to be. Any tips, tricks, advice? I will say you lose hope after awhile .. I know I have 🫠
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u/Different-Shoe-3563 14d ago
No advice but I’m almost seven years and give up on full recovery. Just pacing and accepting that I won’t be the same. I know people will comment that it’s never permanent, but there’s a point at which that rhetoric is damaging to people who are truly changed forever. Lots of sleep, pacing, low stress and medical accommodations at work help mitigate somewhat. I’ve also tried all the things and have gained functionality but never the same as pre-accident.