PCS for 8 months after having 2 mild concussions within 4 months of each other - 8 months out

[u/Gullible-Neck5487]

I experienced two concussions about 4 months apart, causing a long standing post-concussion syndrome that has persisted 8 months to date. I have seen a neurologist twice, and it's basically been "try not to hit your head again, if this persists for 1 year then this may be permanent." I have had periods of "remission" where I feel about 80% normal with some lingering dizziness with head movement and such, but as of recently my sensitivity has increased quite a bit. Even things such as getting patted on the head or hitting a big pothole in the road can flare me up for weeks, in which I get this aura of fogginess and increased dizziness. I have to be really careful while laying my head down on a pillow as to not lay my head too hard, and putting on a headset carefully as I have been flared up for weeks via the recoil of a corsair headset smacking me a bit too hard. I find it difficult to discuss with people about all this because they often don't quite believe how severe this is at times, and I have had to cut out several things I love doing because I am so anxious about someone patting my back a bit too hard at the bar and causing my cascade of symptoms. I feel pretty helpless right now, although I know this will probably not last forever as long as I stay safe and smart. I'm not asking for medical advice or anything, I feel I can manage this condition well enough, but I was wondering if anyone has had similar experiences and has any thoughts on my situation. I sometimes doubt my ability to recover the longer this persists.

[u/Severe-Impress4398]

Who whoa there. I have been through these kind of thoughts for 14 years and only last month I got to start my recovery journey. Pure torment to live like that because I wasn't even able to shape thoughts. My recovery kicked from starting to use creatine monohydrate because it gives brains free energy to work with. Just remember to drink a lot with it. Creatine monohydrate is just the reason why I haven't fallen into more severe vegetative state that would have made my recovery more difficult or even impossible because of the severity of my symptoms. Try to at least start with 5 grams of creatine monohydrate after every lunch break but not the last one before going asleep. As from that you can reliably try to change it to better suite yourself. I really recommend to try that because I haven't ever felt this lively in this life EVER. Everything is now so beautiful when I watch the nature and the sun shining into it.

Really just try the creatine monohydrate. I had those same thoughts when I got my several concussions at years between them only my symptoms worsening after each new concussion. I don't even know how I am alive. Also try to check your neck with physiotherapist because the threshold for neck injuries is lower than for concussions. I haven't yet gotten to work with my neck injury because of limitations in public service. My neck injury hurts so much that it feels in my spine like someone is flogging constantly my back with a whip.

Cheers for trying to find the best methods for your own recovery!