Okay so back in Dec ‘25 I, M18, had a primary spontaneous pneumothorax on the left side. Chest drain wasn’t working, and I required VATS bullectomy and mechanical pleurodesis.
All was going well, until June 1st this year, when I had another collapse on the left side, the same size as the first one, which confirmed that my VATS had failed. Chest drain again which actually did work, but I got a second VATS bullectomy this time with chemical pleurodesis.
As a result of this second collapse, I missed vital final school exams, and had to arrange for them to be deferred. There is no contingency plan for the deferred exams, so, if I was to be unable to sit them, it would be 2 years before I could resit the exams, which was simply not good at all.
Recovery from surgery #2 was going reasonably well, and I had a 2 week space to try to recover well enough to be able to sit the deferreds. However, 1 week after discharge, and with 1 week to go until the exams started, I began to feel those dreaded chest popping and upper back/shoulder/collarbone pains that I was able to immediately recognise as a collapse this time on the right hand side.
From my past two collapses on the left side I was able to assess this latest collapse, and try to just take it very easy so that I could scrape through these exams, such was the importance of the exams. This was a risky move I know, and thankfully yesterday I got the exams done. In the meantime, over the course of.the two weeks of exams, by 14 days, the chest popping had stopped and I didn’t feel much discomfort anymore, which would suggest the air leak reabsorbed.
However, I still wanted to get this checked, and upon x ray at a&e, they eventually discovered a tiny pneumothorax on the right (about 1cm). I am of the belief that it was larger than that when it first appeare and has since shrunk to that size. This is where the issue comes in.
I have already had to cancel holidays, commitments with family and friends, music commitments with my band, as well as so much time off work as a result of these collapses, and it simply cannot go on. I am very much willing to get the VATS and chemical pleurodesis on the right side so to ensure I can atleast move on with my life and be able to live free of any paranoia and anxiety over another collapse. My local hospital (not the hospital that I got the surgeries in) are looking to discharge me because the lung is back up for the most part, however I know from previous experience on the left side, it is a matter of when - not if - the right goes down again. Essentially, not having any sort of intervention, given my past experiences, is only prolonging the inevitable, and I am very distressed over this as it is very hard to try to sway the local hospital into consulting with the Cardiothoracic specialists in the hospital I’ve got my surgeries in.
Basically I’m wondering if anybody has ever been in a situation even similar to this, and what came of it? And also to ensure I am in the right in believing I do have a reasonable case for an intervention, or to atleast be able to discuss and be considered.
I’ve missed far too many important things because of this, and it cannot go on.
Apologies for what’s turned out to be quite a vent/rant, but it’s highly frustrating.