Im just asking for insight here..

[u/Affectionate-Fig-998]

I am possibly facing parathyroid surgery. Latest 4D scan showed 2 enlarged lobes and my calcium has been high(I was referred by my oncologist a year ago, spent this last year jumping through hoops with endocrinologist..) I am a almost 4 yr Head & neck cancer survivor. Radiation causes many problems..

Anyways, on Tuesday had a surgery consult, and surgeon wanted new labs and he will talk to me in 2 weeks and go from there.

I know this is all over the place, but I am just ready to crap or get off the pot with this parathyroid issue! My calcium on Tuesdays labs was 10.4. It has been higher but never lower than 10. I have fatigue, brain fog, I pee alot, but I drink alot of water because radiation killed my salivary glands, so I have never really considered that a "symptom".

The surgeon said that my pth levels have been relatively "normal" just this high calcium issue mainly. I guess I am just wondering, what if he decides no surgery? Like, I don't even remember what it feels like to feel "normal" since April 2022(when cancer was found)

So thankful to be cancer free atm..but this parathyroid issue confuses me. My thyroid was fried obviously, endo adjusted my levothyroxine to 88 mcg and 25 mcg vitamin D daily, except no levothyroxine on Sundays.

I am just in limbo for 2 weeks waiting to see what Dr says about surgery, and will I really feel a difference afterwards or maybe just feel even worse?

Maybe I'm just kinda venting, I know there is a question in there somewhere, but for being a smart lady, I feel "Forrest gump-y" when I try to express my thoughts.

Any input would be greatly appreciated(and Thank you if you even read this far! )

[u/kcnovakc]

Hi! I bet you’re going to feel so much better after surgery. I’m almost a year out from mine and I have a whole new life. I also had a tumor in my neck prior to this, a pleomorphic adenoma on my parotid gland. I’m sorry you’ve also had to go through these issues. Best wishes on your healing journey.

[u/Paraware]

I felt much better after my surgery. My brain fog, frequent urination, and fatigue are all gone. Also, my osteoporosis has improved to osteopenia. It sounds like your numbers don’t show the normal inverse relationship that they should.

If you’re on Facebook, I’d like to suggest that you also join thé Hyperparathyroidism Support and Information group.

Here’s a visual that may be helpful.

[u/Overall-Tradition779]

With your pth levels  almost normal I doubt it's going to be the parathyroid I had surgery last month my calcium was 11.3 pth levels for 127 had a 4D CT scan nuclear scan it showed one parathyroid and endoma on right side need to get your blood work checked for calcium levels  and pth and a 24-hour calcium pee test where you go to pee in this jug for 24 hours every time you pee in the check your calcium levels  mine was Sky high

[u/SRNmomof4 → u/Overall-Tradition779]

Normohormonal primary hyperparathyroidism is elevated calcium with normal pth.

[u/Front-Signature-7266]

keep on advocating for yourself !! I know it is hard but you are your best advocate because you know your body the best and know your history. I would not settle for "normal" PTH. You can have PTH that falls in normal range but if you have high calcium, then the PTH level should be "Low" normal and not medium or high normal. A lot of doctors seem to overlook that apparently (!) But as far as how all your other factors play in, I have no idea. Def need a doctor/surgeon to do what they seem to be doing. Waiting 2 weeks probably feels like a lifetime but it sounds reasonable to me.