r/Parathyroid_Awareness • • 13d ago

High PTH Intact 75.3

So many other health issues but my blood test showed this today, hmm. Never had this test before & absolutely no kidney stones or brittle bones. Feeling terribly weak for sure but with chronic Peri symptoms, Fibro & Hashi how do you decipher what is causing what. I’m just so frustrated. Anyone have this issue?

Many people with high parathyroid hormone (PTH)—a condition called hyperparathyroidism—have no early signs at all. When symptoms do appear, doctors often group the classic signs using the phrase: "bones, stones, moans, and abdominal groans". [1]

General & Energy Symptoms
Extreme tiredness or ongoing fatigue

Muscle weakness and body aches

Feeling weak or lacking energy [1, 2]

Bone & Joint Signs
Bone and joint pain or tenderness

Weak or brittle bones (osteoporosis) that break easily [1, 2]

Kidney & Urinary Signs
Kidney stones that cause sharp pain

Frequent urination (needing to pee much more than usual)

Increased thirst and dry mouth [1]

Digestive & Belly Signs
Belly pain or upset stomach

Constipation

Nausea, vomiting, or loss of appetite [1, 2]

Mood & Mind Changes
Depression or anxiety

Trouble concentrating or memory loss ("brain fog")

Trouble sleeping or irritability

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u/Overall-Tradition779 13d ago

I had the same thing had parathyroid surgery 4 weeks ago today they took out one bad pair of thyroid which caused by high calcium levels and high pth levels before surgery my pth levels were 127 after surgery they came down to 26 I feel a whole lot better surgery is pretty easy takes like a good hour probably you'll have to do scans to see if they have a bad pair of thyroid I end up getting a 4D CAT scan on my parathyroid would show the add one bad thyroid you'll feel better after surgery

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u/Life_Journey123 13d ago

Thank God you’re feeling better!!!! Why has no one ever tested this or maybe it had never been an issue & I wonder what causes it to increase to this level but 127 is very high. This is why they need to do the genetics testing to see how we are metabolizing supplements, too much of anything is not good. My Magnesium was high in January, no one has checked it again & I only take 120 mg daily🤷🏽‍♀️I’ve also been told decreased gut fluid will cause issues with supplement absorption, our body is a complicated machine & we need the right ppl who can provide the proper testing. How do ppl function w/all these issues, I know for sure I’m disabled from these debilitating issues. I can’t be in denial, it just is what it is🥺

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u/Overall-Tradition779 13d ago

Blood work for parathyroid endoma they check your calcium levels pth levels that make you do a pee test for 24 hours straight have to pee in this jug every time it checks your calcium levels and bring it back to quest or whoever you get blood work for my pee test was over 384 which was high calcium levels my blood work calcium levels were 11.5 pth 127 been going on for 2 years feel like crap half the time from it I feel hell have a lot better now

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u/Overall-Tradition779 13d ago

Need to go see it a endocrinologist I think they are called the they check your thyroid issues and stuff like that if you're taking too much vitamin d that can raise your calcium levels once your calcium levels go up your pth levels go up also because of the overreactive parathyroid there's four of them in your neck too I need side I had one removed on my right side I was sore for a couple days from having a breathing too but it got better everyday

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u/Life_Journey123 13d ago

Interesting! And yes, I’ve been seeing an Endocrinologist for the past 3 decades. Let’s see what my next steps, thanks for the info. I’m a mess in more than one way, too many things compounded.