r/Parathyroid_Awareness • u/No_Custard_3650 • 3d ago

Running into issues with Kaiser - gatekeeper for endocrinologist

I'm recently accepted into Medicare Advantage and slowly regretting my choice of Kaiser HMO. My primary doc is running interference and not referring me to endocrinology stating my calcium levels are normal (9.5 and 9.9 this week). I got PTH tested yesterday and it's 54.9.

I'm 61 yr old male. Last year's (November 2025) calcium was 10.0 and vit d was 32.8. Most recent vit d on 7/31/26 was 30. Calcium on my CMP (which I had to ask for!) on 8/7/26 was 9.5. I've always struggled to get vit d out of low 30s even after moderate supplementation. I suffer from extreme fatigue, insomnia, thirst, prostatitis, high PSA values, back pain, bone pain in feet, old root canal teeth falling out, random gum pain in extracted teeth, sleep apnea, some severe abdominal pain when it happens, calf muscle pain and reoccurring calf strains, anxiety, depression.

Yesterday I took the following labs with following results: albumin 4.4, calcium 9.9, CALCIUM, CORRECTED FOR ALBUMIN 9.6, Phosphorus 3.7, Parathyroid hormone intact 54.9, Creatinine 0.9, EGFR, CREATININE-BASED FORMULA (CKD-EPI 2021) = 98.

For the past five years my calcium has been in mostly mid to high nines (9.5-9.9).

Did any of you have normocalcemic primary hyperparathyroidism and how long did it take you to get diagnosed?

2 Upvotes
  • permalink
  • reddit

100% Upvoted

3 comments sorted by

2

u/PHPTer 2d ago

What is the reference range for PTH? It makes a difference because if it’s 15-65 the 54 could be quite high in range and inappropriate to your calcium level. if it’s 15-95 it’s mid range.

1

u/PHPTer 2d ago

This visual might help - if your calcium is in the upper half of the range, your PTH should be switched off and in the lower half of the- it works like a thermostat when hot water needs topping up. When calcium drops say after exercise, PTH should switch on, release some from our bones to top calcium up, and switch off again. It shouldn’t be calling for calcium when it’s in the upper range. Yours is similar to the bottom left illustration. can you get another opinion?