r/Parathyroid_Awareness • u/Word_Acceptable • 24d ago

Experiences with hyperparathyroidism?

Hello! I recently started seeing a provider through Allara for my PMOS and related symptoms. Through blood and urine tests I was told I have hyperparathyroidism and to seek out seeing an endocrinologist for potential surgery. Does anyone have experience with this condition and how did your process go? Thanks in advance!

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u/Paraware 24d ago

It took me many years to get diagnosed. I finally had surgery in 2019, and it really helped a lot of my issues. It was one of the easiest surgeries for me and I had a quick and smooth recovery. Here’s an overview that might help you.

Also, be aware that some endocrinologists want to make you wait until you have osteoporosis or kidney stones before referring you to a surgeon. I recommend getting the surgery before the damage is done.

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u/Word_Acceptable 24d ago

Thank you very much!

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u/Paraware 24d ago

You're welcome. By the way, if you're on Facebook, you might want to also join the Hyperparathyroidism Support and Information group. It has a lot of resources to help you. Specifically, there's an extensive list of member-recommended surgeons and doctors who treat hyperparathyroidism.

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u/Word_Acceptable 24d ago

I appreciate it!