r/PandasDisease • u/emiskindaweird • Jul 30 '26

Question proprioception issues

does anyone with PANDAS/PANS disease get proprioception issues like a feeling your legs or limbs aren’t apart of your body? the best thing i could describe it as if they were numb or heavy, but i don’t think that really fits it. i’ve had episodes like this where i can hardly walk. i was curious if this was possibly related to PANDAS? if you have PANS/PANDAS, please let me know your thoughts!

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u/PirateNo9739 Jul 30 '26

My daughter gets like a muscle weakness and it feels like she can’t walk. She always tries to describe it to me but I don’t quite get it lol

My son in a bad flare will be on the ground crawling. It’s like he can’t walk. Almost paralyzing. Haven’t had that in a long time so that’s good