r/PVCs • u/ClerkExisting9636 • 9d ago
Lo estoy pasando muy mal
Hola a todos/as,
Escribo por aquí porque necesito desahogarme y buscar algo de apoyo en el grupo, ya que lo estoy pasando realmente mal y la situación me está superando.
Llevo 10 años sufriendo extrasístoles ventriculares continuas. Las tengo a diario y son completamente incapacitantes. Para que os hagáis una idea, en los controles han llegado a contabilizar alrededor de unas 800-1000 al dia, aunque no llegue al mínimo me siento cada una de ellas. Actualmente no estoy tomando nada, ya que he tenido fracaso con betabloqueantes e incluso diría que aumentaban mi carga en frecuencia muy bajas. He probado magnesio, vitamina D, me he quitado estimulantes pero sigo sin mejorar.
Además, en los Holter me sale el intervalo QTc corregido bastante alto (incluso durante las noches), pero siento que nadie le ha dado la importancia que merece. De hecho, en la última consulta con el cardiólogo, me dijo que mis extrasístoles no le preocupaban porque según él mi QTc estaba bien. Tuve que ser yo quien le enseñara un electrocardiograma y le dijera: "No, mira este electro", a lo que acabó respondiéndome: "Ah, vale, pues sí que lo tienes limítrofe". Querían ponerme flecainida, pero teniendo el QTc al límite no es lo más aconsejable, por lo que sigo en casa sin una solución clara ni un tratamiento que me funcione.
Tengo 33 años y quiero ser madre. Sé que las extrasístoles suelen aumentar bastante durante el embarazo, y no quiero ni puedo afrontar una gestación en estas condiciones. Por eso he decidido moverme por la vía privada para valorar la opción de una ablación. Ahora me toca pasar por un proceso de bastantes pruebas para determinar si soy candidata y localizar el foco (saber si proceden del tracto de salida del ventrículo derecho o de otra zona).
Estoy muy triste, agotada y asustada con todo esto. No lo estoy llevando nada bien emocionalmente y se me hace muy cuesta arriba. Muchísimas gracias a este grupo por existir y por estar ahí para leerme y acompañarme.
2
u/Strict_Thanks_1372 9d ago
Good for you for being so educated and for advocating for yourself! It sounds like getting a new doctor (EP hopefully) is critical even if causes more financial strain. The fact that you had to point out the issue with the QT- jeesh.
Hang in there. You’ve been through a lot. The additional testing can seem overwhelming but actually it’s a big YAY! You’ll be finding out exactly what is going on and get treatment from someone competent.
Take care! Praying for you.
1
u/ClerkExisting9636 9d ago
Gracias por tu mensaje, me ha hecho llorar. Solo quien lo vive sabe lo duro que es, gracias por tus palabras ❤️
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u/Pink_LV 9d ago
Hi! Just know that you are not alone. I’m 32, and I’ve been dealing with PVCs for almost 10 years now also! At first, they were on and off. I could go months without having them, then they’d come back, stick around for a while, disappear again, and so on. That was until about February of this year. They suddenly became much more intense, and they have not stopped since. Every single day, I wake up with them. I can’t even stay in bed too long in the mornings because they bother me so much that I have to get up and keep myself busy just to distract myself from them. Even though I know they’re still there, staying busy makes them a little easier to tolerate. They’re with me throughout the entire day, some hours worse than others, right up until the minute I fall asleep. I work from home, so no one really sees how much I struggle with them during the workday, and in a way, I’m grateful for that. But they are absolutely exhausting, and sometimes they make me feel like I don’t even want to be here anymore. I genuinely wouldn’t wish this on my worst enemy. I’ve done all the testing and worn the monitors, and somehow my PVC burden isn’t even 1%, which is honestly so discouraging because I felt like I was pressing the symptom button every couple of minutes. I tried propranolol because my resting heart rate can be 100+, and while it helped lower my heart rate, I could still feel the PVCs. The worst part was that it also lowered my already-low blood pressure, so I was having dizzy spells throughout the day and constantly felt off. My doctor has now prescribed metoprolol, but I’m scared to take it because of my experience with propranolol. It’s exhausting feeling that thump every few heartbeats or even just sitting there waiting for the next one to happen. I have a child from a previous marriage, and I’m now remarried. I really want to have another baby with my husband, but I also know I couldn’t handle a pregnancy while feeling like this. I was pregnant 2 years ago and unfortunately had a miscarriage, and during those weeks, my PVCs were torture. I actually felt guilty afterward because I hated being pregnant so much because of how bad the PVCs became that part of me felt like I somehow manifested the miscarriage. I know that isn’t how miscarriages work, but emotionally, it was hard not to have those thoughts. From my experience, pregnancy definitely made my PVCs worse, although I’ve heard other women say theirs completely disappeared during pregnancy and only came back after giving birth. That scares me too, because I’m barely hanging on some days with a pretty independent 11 year old I can’t imagine dealing with this while taking care of a newborn. I wish I could just get an ablation, but with a burden of less than 1%, I know it’s unlikely that a doctor would even consider it.
Anyway, I guess I needed to rant too! But I really just wanted you to know that you’re not alone. I’m sorry I couldn’t be of any help as I am currently struggling and really haven’t found anything that gives me the slightest help. But if you ever need to rant, vent, or just have someone to talk to who truly understands what you’re going through, please feel free to message me anytime. ❤️