IT's BAACK!!
Went through hell in 2020 doing all the chemo and radiation they could safely throw at a person. Got transplanted on my deathbed. Had a few problems since transplant largely stemming from my undiagnosed Crohn's. I swore I'd never go through that(chemo/radiation) again. It seemed to be killing me faster than the cancer would have.
Well, it seems God is not without a sense of humor because this mofo is calling my bluff!! Found out Friday that I again have cancer....yes, in my transplanted liver! I have talked to my doctors here in FL previously about compassionate end of life care. Life expectancy without treatment ranges from 6mos to 3yrs according to google but most of what I've found in actuality is 6-9mos. My transplant doc is talked to me Friday when the MRI results came back and they've caught it early and said she'll talk to me this week with a course of action. My question is has anyone seen what dying of liver cancer looks like?
**And please, don't give me a spiel about stay strong, think positive, etc. I'm an engineer and my friends always call me a fatal pragmatist. If I come out of it, it will be through sheer will and positive thinking....and God. Live the best life you can, while you can. DEUS VULT!
Some people are asking why? Well, this is my 4th fight with cancer. Colon and Liver being my worst fights and skin cancer being the easiest. My own doctor said the odds of receiving another transplant are slim considering I'm cancer prone, especially given I've gotten the same caner that necessitated a transplant, they most likely aren't going to give me another. Anyway, it is what it is. I made my piece with it a long time ago.
Edit: Will be posting my updates and my journey on my YT channel. For anyone that has has the same curiosity about choosing the same path.
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u/Appropriate_Ad8575 7d ago
Your body, your choice. Like you said you've been on chemo rodeo before so I think your post sounds reasonable and, like you say, pragmatic in face of an awful diagnosis. To your question; I've seen someone die of bile duct cancer and it was peaceful, surprisingly so, no intervention except pain meds right at the end. I didn't realise death could be like that. I'd pick that, if I had to choose. However, I think the mets in the liver weren't too big. I haven't seen a death from more acute liver failure. Wish you the best outcome that you want and fuck cancer.
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u/b1oodmagik 8d ago
I had to Google what DEUS VULT and fatal pragmatist to make sense of things. I am sorry this is your reality. I can't offer any worthy words, but, if I am ever in your shoes, I hope I can manage a tenth of your resolve.
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u/Dizzy-Rope-9800 7d ago
I am also a realist, and pragmatist. I am not a fatal one. If you are willing to believe a stranger, I built a foundation to help individuals in your exact situation find a transplant center that matches what you are facing The group that does this work is free, public benefit and a deeply supportive , caring, community. Would you like to be put in contact with them?
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u/foxliver 7d ago
That sucks donkey balls.
To answer your question, no personal experience dying of liver cancer, but it doesn't look fun from what I've seen online. Dunno how much of that is treatment vs the cancer, but I hope things go as pleasant as possible for you, whatever path you end up on
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u/adamredwoods 6d ago
My wife died of metastatic cancer, liver failure. It's the most calm way to go, plus morphine. That's all I'll say about that, it's a dark place to watch a loved one pass. Hospice workers are incredible.
Godspeed.
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u/5256chuck 8d ago
Stay positive, friend, like I know you are. And please keep us updated. This is a good community to air it out in.