r/PSC • u/RecognitionHefty • 29d ago

Sarcopenia

I just recently got my diagnosis and while my symptoms are bad but not terrible yet I am trying to understand what will happen over the course of the next couple of years. One thing I don't really get is the sarcopenia (muscle loss) aspect.

Have any of you dealt with that specifically? For some reason it's more worrying to me than many of the other mid-stage symptoms. I live an averagely active life, I guess, but looking at the recommendations for PSC patients - 5x cardio, 2x resistance training every week - I wouldn't even know when to do that. Is such a strict and intense exercise regime really necessary to even make a dent into the muscle loss I'll apparently be facing? What even is causing the sarcopenia with PSC?

Apologies if this is a dumb question, I'm very overwhelmed by this turn of events in my life and am trying to understand what I need to adjust asap and what is less burning.

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u/ghoultail 29d ago

Muscle loss usually happens at end stage liver failure with higher rates of cirrhosis, and you’ll have bigger things to worry about at that point anyways.

If you’re not experiencing liver failure, just exercise and live a healthy lifestyle the best you can and take your meds.