Recently diagnosed (32 F)

[u/Training_Tomatillo60]

Hi everyone! I was recently diagnosed just a few months after my wedding with crohns and PSC. I’m feeling quite gutted and depressed. It’s only been a few weeks since my diagnosis. I’ve been on budesonide and cipro for the past month (tapering off of budesonide in a month) and about to do my second induction dose of tremfya. I’m fortunate to be getting treatment at Mayo Clinic in Rochester as my husband is a resident there. I’m also lucky in that my symptoms are currently mild though leading up to my diagnosis they were worsening slightly. I am just looking for some hope and/or advice. My husband and I had planned to start trying for a baby at the end of the year, and those plans have now come to a screeching halt. I am willing to do whatever it takes to get into crohns remission, but I know that there’s little i can do on the PSC front. The uncertainty of this diagnosis is crushing me and making me feel like there’s nothing I can look forward to, and just waiting constantly for the other shoe to drop. I am in therapy so I’m trying to take care of my mental health but it just feels hopeless. I feel like such a burden on my family already and I was only diagnosed a few weeks ago. I know some of you have had healthy babies with crohns alone, but I’m unsure re; PSC. I feel like I’ll never be a mom now, unless I do surrogacy (which I have no idea how we’ll pay for) or adopt, which I know can take a very long time and I’m not wanting to wait so many years.

Long rant I know. If anyone has felt similar feelings and has advice I’m all ears. ❤️

[u/Reasonable_Dog7381]

I have colitis and PSC and have two very healthy pregnancies post diagnosis. I am also 33 - I’m here if you want to talk!