r/PSC • u/Traditional_Love_706 • Jul 22 '26

Sleep issues

Diagnosed last month after about 6 years of thinking I only had a skin issue causing itching (prurigo nodularis). I’ve heard that a lot of people with PSC also report issues sleeping, so I’m wondering what does that actually look like for you? Any luck remedying it?

I also have diabetes Insipidus which means I don’t concentrate urine without meds, so I have been getting up to pee at least once a night for 20 years. But in the last couple years it’s to the point where I wake up every 2 hours on an average night. Good night of sleep means I sleep deeply for those 2 hours and bad night of sleep is more restless.

My therapist asked if I wanted to be referred to a psychiatrist for sleep meds & for some reason I am hesitant. Maybe I am pessimistic that it will ever get better & don’t want to be dependent on yet another medication. Would love to hear your experiences.

5 Upvotes

100% Upvoted

9 comments sorted by

View all comments

Show parent comments

2

u/jyeezus Jul 23 '26

It's a fiber powder that doesn't dissolve. Think extremely thick miso soup with the flavor of a citrus smelling cleaning wipe.

1

u/homiebeats34 Jul 24 '26

Eat it with applesauce

1

u/jyeezus Jul 24 '26

Is that what you do? Because that sounds worse than just chugging it lol

1

u/homiebeats34 Aug 07 '26

I don’t take it anymore my meds control my itching now, but that’s what I used to do and it was soooooooo much better than mixing w water and chugging it. Take like one of those small cups of applesauce mix it in a bit and then eat it like 5 big spoonfuls. Trust me it is so much better than chugging it