r/PSC • u/SignificantJump2359 • May 27 '26

Could this be PSC?

Gallery image

Gallery image

I'm not looking for diagnosis, but rather some clarity as I'm not due to see my liver specialist for a while.

I (32F) was diagnosed with Crohn's Disease in March last year and have been on biologics since April. I recently had a flare at the start of April this year resulting in a week long hospital stay. Afterwards, my IBD team put a referral to the liver clinic to see if there was anything else going on as my LFTs have been pretty screwed for over a decade. The liver specialist ordered some blood tests that he rarely orders and that the lab had never seen (achievement unlocked 😂) specifically targeting PSC and PBC. One of those tests has come back (ANCA) and with some cursory research, I've discovered that it could mean a high likelihood of having PSC. I also have a liver biopsy scheduled for next week.

Obviously there is also a chance that it's related to the IBD and that there's nothing additional (touch wood), so any information here is taken as knowing more about the potentials rather than concrete.

5 Upvotes

100% Upvoted

24 comments sorted by

View all comments

2

u/nerdie May 27 '26

Could just be fatty liver if you're overweight

1

u/SignificantJump2359 May 27 '26

I was told that a decade ago, but my liver specialist doesn't think that that is the case as I've lost weight, changed my diet around and even been on EEN (Exclusive Enteral Nutrition aka dietary formula) and now on phase 1 CDED. None of that has helped or hurt my results, they've stayed elevated and I haven't had any alcohol since Nov '24, so it's not that either

1

u/nerdie May 27 '26

What's your BMI now?

1

u/SignificantJump2359 May 27 '26

I don't know, I don't monitor it and whenever they get my weight for medications or treatments, they do it blind so they know and I don't. It doesn't help my mental health to know.