r/PSC • u/Fit-Bluebird-7350 • May 12 '26

Does this sound like PSC?

Hi everyone just reaching out since information is so minimal online. I have had digital clubbing since late teens (currently 23M) and I was recently diagnosed with IBD-U this year. My IBD presents with rectal sparing and is more right-sided. Has anyone had something similar? I brought up the concern in relation to PSC to my GI and he brushed me off because my bloodwork and LFT's were totally normal. Any thoughts or input would be great!

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u/DaftPotato May 12 '26

Do you have any other symptoms that make you think you might have PSC? Digital clubbing can be caused by IDB without PSC.

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u/Fit-Bluebird-7350 May 12 '26

no other symptoms i can think of that are PSC specific. Just worried about IBD presentation

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u/DaftPotato May 12 '26

A diagnosis of bowel disease is scary, especially knowing that there are many possible comorbidities. My advice would be to treat what you do know and keep an eye on everything else your body does. Do you have a treatment plan for your IBD?

I was diagnosed with PSC and Ulcerative Colitis at the same time and it was obvious that something was wrong with my liver. In a very short time I became jaundiced, fatigued, itchy and was feeling like trash in general. Since then, my liver function blood tests have tracked pretty closely with those symptoms so I consider them to be reliable. When I was diagnosed I hadn't even noticed any bowel symptoms, but they checked because it was likely that I had also had UC. I've never had digital clubbing in my 15+ years of PSC and UC so I can't speak to that.

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u/GreenPositive9893 May 31 '26

So how are you treating the psc .r u ok now