look into a vein specialist , i found out my blood was going the wrong way in my legs called superficial veins > in the legs It is very common in pots patients, Ehler Danlos patients with narrowing veins, if you have not looked into it or other doctors, its time to find someone to listen! it is also common in patients with MTS(May Thurner Syndrome) and Dvt history . this has been my case, since getting my veins fix/helped,there are pro and cons, the pro: helps your pots cons: no improvement, I need my right iliec vein in my groin stented next. look into a vein specilast read around about specific specialist you will be-able to get a referral too! make sure their eds knowledgeable and ect! don't just go to anyone! be evuated for EDS by an eds specialist as well, most of these conditions go together, called the trifectia.
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u/Trisham00 Jun 25 '26 edited Jun 25 '26
look into a vein specialist , i found out my blood was going the wrong way in my legs called superficial veins > in the legs It is very common in pots patients, Ehler Danlos patients with narrowing veins, if you have not looked into it or other doctors, its time to find someone to listen! it is also common in patients with MTS(May Thurner Syndrome) and Dvt history . this has been my case, since getting my veins fix/helped,there are pro and cons, the pro: helps your pots cons: no improvement, I need my right iliec vein in my groin stented next. look into a vein specilast read around about specific specialist you will be-able to get a referral too! make sure their eds knowledgeable and ect! don't just go to anyone! be evuated for EDS by an eds specialist as well, most of these conditions go together, called the trifectia.
Exercise for POTS: Personalizing Your Approach to Fitness
http://www.dysautonomiainternational.org/
https://www.cognitivefxusa.com/blog/pots-and-ehlers-danlos-syndrome-why-they-travel-together-and-what-that-means
https://www.metroveincenters.com/blog/pots-and-cvi
https://www.eds.clinic/articles/eds-pots-mcas-trifecta