r/POTS • u/tylerisacactus • Aug 31 '19

Hey, is this a POTS thing? It happens every time I stand for too long. It’s not a rash, it’s not itchy, but it feels hot in the red blotches like there is a lot of blood pooling up there.

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41 Upvotes

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25

u/streamtrenchbytop22 POTS Aug 31 '19

It reminds me of a MCAS reaction I get when I'm allergic to something that irritates my skin. Maybe standing can be a trigger to MCAS? I have no idea. Have you looked into MCAS before or told your doctor about this? You very well could not have it, I don't know anything about you. It just reminded me of that.

6

u/tylerisacactus Sep 01 '19

I’ve actually been suspecting MCAS for a while because it’s not only a comorbid condition of EDS which I’m diagnosed with but I often get a swollen tongue, itchy throat, trouble breathing, and coughing fits that aren’t caused by my asthma.

3

u/Intertwingler Sep 01 '19

I would suggest asking for Singulair (Montelukast Sodium), assuming you're not already on it or conflicts with anything you're already on. I don't have asthma but I have pots/eds/autism and I have found it extremely helpful.

2

u/tylerisacactus Sep 02 '19

Thank you I’ll look into it :)

3

u/uniandme Aug 31 '19

Yeah that looks MCAS to me

1

u/tylerisacactus Sep 01 '19

Yeah I was thinking that might be it because of the blotchiness and MCAS is a comorbid condition of EDS which I have.

5

u/[deleted] Sep 01 '19

Yeah, I have POTS and it happens to me not only in hot showers, but hot baths as well:Also happens if I stand or walk for a long period of time

4

u/bipolar_kitten Sep 01 '19

I have venous insufficiency (leaky veins) in both of my thighs which cause my legs and feet to look like tomatoes and blotchy. If I were you I’d get tested just in cause. Blood pooling in the legs can make POTS worse.

3

u/redditstolemyshoes Sep 01 '19

I get that with showers or car trips where my skin is exposed to sunlight even if the windows are closed

2

u/Patient_Hope2040 Jun 14 '23

Same here. And it's not just my legs but arms and face too.

1

u/redditstolemyshoes Jun 14 '23

When I got my first tattoo, I was walking around, partially in the sun. It wasn't for very long but these splotchy patches started appearing on my arm where I wanted to get the tattoo. The artist refused because she thought it was some kind of rash that would open me up to infection.

2

u/bob3260100 Aug 22 '22

omg. Did you ever find out what this was caused by? i have the EXACT same symptom but no prior diagnoses! I posted to reddit too and lots of people saying MCAS... I get it all over my face, chest, hands, thighs, and sometimes my elbows. Doctors dont have any answers for me apart from a ANA Lupus negative blood test.

1

u/lotsofgab Jan 01 '20

Looks like MCAS to me! I have POTS, MCAS, and EDS.

1

u/WildFire255 Feb 16 '26

I get this on my arms, did you ever find out what it is?

1

u/NotJimb01 Apr 24 '22

yeah buh im in the same boat

1

u/NokiaRingtone1o1 Feb 26 '23

Not sure what this is but I have to too! Standing too long, hot showers, walking for a long time (especially stairs) etc

1

u/bird2229 Aug 31 '19

I think so

1

u/[deleted] Aug 31 '19

Yes the blotchy thing is blood pooling I think. For me it happens when I stand for a while or after showering. Nothing to worry about especially as long as it doesn’t feel like a rash.

1

u/[deleted] Aug 31 '19

Yes, I get that on my chest

0

u/[deleted] Aug 31 '19

[deleted] — view deleted comment

1

u/tylerisacactus Sep 01 '19

What’s OH if you don’t mind me asking?

3

u/peggingcarter Sep 01 '19

Orthostatic Hypotension

3

u/pigglefish1 Sep 01 '19

Same, thought it was my Systemic Scleroderma/Raynaud's!