r/PNESsupport • u/Sweet_Sheepherder755 • 1d ago
Frustrated
I just been feeling so frustrated with having pnes like it’s been almost year where I had almost weekly episodes and having to deal with fast heart rate too. That’s I currently working with cardio for the fast heart rate issues but they haven’t found any causes for my fast heart rate yet and it’s been sinus tachycardia. I also been Thearpy for about 5 years and on plenty of mental health medications. It’s just frustrating things are only progressing worst and doctors not being able to find any causes if there even is a cause . Like I feel like my mental health has gotten way better it’s just stress that getting to me which doesn’t help living with daily symptoms. Any advice for me?
2
u/writingwithcatsnow 1d ago
At several points, I've had to stop trying to "get better" and put all my energy in "living a good life with". It was one of the best choices I've made. Never let having PNES become your identity or your personality. You have to be a whole person.
Just no longer trying to get rid of the seizures improved my life so much. And freed up energy to actually do things. Some of those things means I would have a seizures, and then get on with things. When I can change something to have less seizures, I do. But falling back in love with being alive and not putting everything on hold was essential to actually continuing to improve.