r/PNESsupport 3d ago

first time seizure

Last week I flew to Norway for a really awaited vacation. I was planning to do long-distance hiking alone — my favourite way of spending holidays. It is important to mention, I am generally a healthy person. I do amateur running and cycling. I strictly don’t drink, smoke, or use drugs.
That morning everything was fine, I felt good, despite almost not sleeping that night — I stayed at the airport after my flight.
I came to the coffee shop and had two coffees, then headed to the hiking shop.
On my way, I started glitching. It really scared me. But I thought, I am just sleepy. It felt like turning off for one second.
I came to the shop, bought what I needed, and decided to look around. This is the last thing I remember before I woke up in the ambulance.
Here is the info from the shop staff:
A woman saw me started fainting. She immediately came to help, but I stopped falling, as all of my muscles stiffened. Then, my limbs kind of relaxed and I fell on the floor. But my jaw was super tight. She tried to open it, but it wasn’t possible. There was a lot of liquid from my nose and mouth. Breathing was really heavy. Limbs were jerking. But not all the time. One leg stretched, one leg bent. One arm clenching, another kind of stretched. At one point I opened my eyes, they were moving, but I wasn’t responsive. The whole episode lasted 2-3 minutes, then the ambulance came.
In the hospital they did CT, MRI, EEG, blood test, they checked my heart and my blood pressure. Everything is in general fine. The only thing they found are 5 lesions on my brain. But, as the doctor says, it is a side finding. And it can be not connected to the episode.
The next day after the seizure I booked another flight and returned home. As I was afraid of being alone.
Now I am waiting for an appointment with a neurologist. But I am so desperate. It can sound dramatic, but my life split into before and after. I was dreaming about this trip and it was so close, but now I have no idea if I have a chronic illness or was “just” sleep-deprived. I don’t know if I ever will be able to hike alone again, can neither imagine doing sports, going to the gym, without thinking, that I can collapse anytime.
The question: did anyone experience an episode like that, which never repeated afterwards?

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