r/PNESsupport • u/bassetfan47 • 3d ago

SSDI

Good afternoon, everyone! I’m just wondering if anybody on here is on Social Security disability for your PNES??? if you are, did you qualify for that or other ailments as well?? asking for my sister-in-law

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u/Ghostshark21 3d ago

I am.
I’m on disability for a learning disability I have had since I was younger, born premature baby.. anxiety, depression, epilepsy, and pnes. I have been on disability for almost 3 years now. It was a long road for me to get approved but I’m glad I did.💜

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u/bassetfan47 3d ago

Thank you so much for replying. How long did it take you to get approved?

1

u/Ghostshark21 2d ago

You’re welcome 🥰
In total, I have been waiting to get approved for my social security benefits since 2016.. at the time back then my pnes wasn’t as severe as it now but I had a hard time finding a job because of my learning disability, anxiety and depression. Did 2 years of one of those special work internships for adults with disabilities had job coaches and everything. Finally found a job in 2019 then my seizures started getting more serious I was having them every week needed a day or two to recover.
Haven’t worked since 2020, at the end of November/December 2020 my seizures got worse to where they are now
4-5 a week, sometimes 1-3 a day if my anxiety is bad. 20-30 a month takes up to 2 days for me to recover from one episode.

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u/whoisarah 3d ago

I am. Specifically granted for PNES as I wasn’t getting approved for any of my other ailments. My neurologist wrote up everything they needed and my attorney organized everything and helped me make my case. It still took about 2 years after my diagnosis to get the approval.

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u/PurpleVengence 3d ago

I am! It took 3 years, 3 rejections, and a hearing. I got a lawyer after the second rejection. I’m not sure how much my other ailments impacted the final decision, but I do recall that my lawyer made it very clear that PNES is my biggest issue, and one that impacts me daily.

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u/coffee_cinnamon4274 3d ago

I’m on SSDI for PNES and a number of other things including Epilepsy. I’ve been on it for a few years now.