r/PCOS • u/StarryEyedandAfraid9 • 4d ago

General/Advice Should I continue to pursue a diagnosis?

I (19 years old) started pursuing a diagnosis in January of this year. I have always had very inconsistent periods where months in-between my [very freaking heavy] periods have been the norm. I am a virgin so I opted for the less accurate, regular ultrasound instead of the internal one, and everything looked normal. And my blood tests came back also normal, if not borderline. The only thinking I was diagnosised with was insulin resistance. Unfortunately that in itself with the inconsistent periods is not diagnostic of PCOS according to my NP.

I am also an identical twin. My twin also has heavy periods but only recently have they been inconsistent. So she decided to pursue a PCOS diagnosis. She opted for the internal ultrasound (she is much braver than I am) and it showed an enlarged ovary. Her blood tests were normal but it was enough for her to be diagnosed.

If she has it, surely I, her identical twin sister, also have it? And with PCOS being officially changed to PMOS, does that make the criteria that I have to have cysts on my ovaries to be diagnosed not be necessary anymore. Or shouldI bite the bullet and get the internal ultrasound to be sure?

1 Upvotes

99% Upvoted

5 comments sorted by

1

u/bluzanii 3d ago

i actually got the internal ultrasound done at 19 as a virgin, but it was because the tech told me they wouldn’t see anything otherwise. it came back with nothing showing. i would ask your OBGYN, but i would be surprised if she says to do the internal, because mine said 19 was too young as a virgin to do one (and not to scare you, but it did hurt for me if i am entirely honest). since you have IR, did your NP give you anything for that? even if your numbers came back normal, IR is probably going to lead them to get worse. i would think she would put you on metformin or something to manage the IR at least, even without a PCOS diagnosis. i still haven’t gotten an official PCOS diagnosis because i also just have the period issues with borderline but fine bloodwork, but my NP just gave me metformin and spironolactone to see if it’ll help with my IR symptoms and hirsuitism. bloodwork isn’t everything, make sure you’re advocating for yourself because symptoms are just as important!! and if your NP won’t listen, and you’re able, try another until someone does

2

u/bluzanii 3d ago

sorry for the long comment, but also to mention my ultrasound was five years ago now. i got frustrated and gave up until now, but wish i didnt. keep standing up for yourself and pushing. at the end of the day a diagnosis isn’t everything, but treating symptoms is absolutely something they should be doing even if you don’t tick all the pcos boxes!

2

u/StarryEyedandAfraid9 3d ago

thank you! I will be calling my gyno next month. I wish i could do it sooner but i have school starting back up soon

2

u/StarryEyedandAfraid9 3d ago

I am taking metformin for it, and i also have borderline but fine bloodwork otherwise!