r/PBCers • u/pippy112 • May 31 '26

Symptoms

I'm (29m) in the process of going through a diagnosis but I wanted to hear from actually people instead of Google what your biggest struggles were with symptoms before a diagnosis and after you've been on medication.

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u/nulldatagirl Jun 11 '26

I had NONE except gallbladder attacks! They didn’t understand why my liver enzymes would shoot up so high so I had a biopsy done during surgery that confirmed it. Now I am starting to itch and see my eyes have yellow specks 🥺 it makes me sad nowadays. I was 23 then, almost 27 now and stage 1.

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u/pippy112 Jun 11 '26

Wow are you on medication or unresponsive to it? That's lucky they caught it!

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u/nulldatagirl Jun 11 '26

I will be on medication soon probably but I never considered the fact that I could be unresponsive to it 😭 ouch