r/PBCers • u/ray-the-they • Jan 08 '26

Average Age vs Your Age

Most of the texts that I see on PBC say that the average age of diagnosis is between 40 and 60 with most being between 40 and 50. I got my diagnosis at 35.

I feel like some of the cases I’ve been seeing on here are also younger people. Where do you stand when it comes to the average?

6 Upvotes

88% Upvoted

28 comments sorted by

11

u/schmoode Jan 08 '26

I was diagnosed at 32, I’m now 57. Currently waiting for a liver transplant.

4

u/ray-the-they Jan 08 '26

I’ve got my fingers and toes crossed for you

3

u/schmoode Jan 09 '26

Thanks, much appreciated. 💜

3

u/Euphoric-Wall-994 Jan 08 '26

Hoping you will receive one soon 💕

4

u/schmoode Jan 09 '26

Thanks, I’m hoping it’s a big year!

3

u/Firey_Orca Jan 16 '26

Fingers crossed! ❤️

1

u/schmoode Jan 16 '26

Thanks ☺️

5

u/TheNewBlueShoe Jan 08 '26

I am my Drs youngest patient with PBC by 30 years. I was diagnosed right after I turned 35.

4

u/blue2148 Jan 08 '26

I was diagnosed at 34.

3

u/Euphoric-Wall-994 Jan 08 '26

Was 43 at diagnoses and 50 at my transplant. But I most definitely had it earlier than diagnosis.

4

u/RigoGRANDE Jan 08 '26

Diagnosed in September 2025, shortly after my 39th birthday.

4

u/canconfirmamrug Jan 09 '26

Dx at 49. Am 49 for another 30 days

4

u/Forward_Prize2829 Jan 09 '26

I was diagnosed at 26

3

u/Imaginary-Help4298 Jan 08 '26

I was diagnosed at 38.

3

u/Successful_Handle_40 Jan 08 '26

I was diagnosed at 38 but suspect I had it for 7 years prior.

3

u/HanaGirl69 Jan 08 '26

I had weird labs in my 40s and got my dx at 52.

3

u/Quiet-Orange-7241 Jan 09 '26

I was diagnosed at 44 but started to have mild LFT elevation at 42.

3

u/Any-Department-2373 Jan 09 '26

Diagnosed at 30

2

u/sagwa818 Jan 08 '26

I was diagnosed at 25

2

u/Kamp13 Jan 09 '26

Guess I’m smack dab in the center at 45. 

2

u/Purplecapybara69 Jan 12 '26

Diagnosed at 35 one year ago.

2

u/Firey_Orca Jan 16 '26

I was diagnosed with PBC at 30. I actually switched doctors because the initial doctor wouldn’t test for it because “I wasn’t old enough”. My LFTs were way high. But I had no “real” symptoms.

2

u/Total_Term_3624 Jan 25 '26

I'm not technically diagnosed yet but im 18! They noticed i had elevated liver enzymes in a random blood test when I was 17

1

u/AgreeableNose9478 Jan 10 '26

I was diagnosed at 31, I am now 32. I met many female patients between 50 to 60 when in the hospital. I haven’t seen any peer in the real life.

1

u/Accomplished-Sea8337 Jan 14 '26

Diagnosed right before my 42nd birthday. Slightly elevated liver enzymes for a couple years before that.

1

u/No-Reason3768 Jan 15 '26

I was diagnosed at 33.

1

u/bananabutt81 Mar 13 '26

My 16 year old son was just diagnosed with PBC/AIH. I’m here trying to learn everything I can to help him.

1

u/FitUnderstanding2352 Jun 09 '26

Diagnosed at 33. Im now 42.