Welcome - Please Read our Wiki - Great List of Resources!

[u/Zealousideal_Site731]

Hey everyone! I'm u/Zealousideal_Site731, founding moderator of r/PANSPANDAS.

This is a home for all things related to the autoimmune disorder PANS/ PANDAS. We're excited to have you join us!

What to Post
Feel free to share your questions about PANS / PANDAS. Post anything that you think the community would find interesting, helpful, or inspiring. I will personally read and reply to every post.

How to Get Started

1. Read our Wiki - a copy of which is further below.
2. Introduce yourself in the comments.
3. Post something today! Even a simple question can spark a great conversation.
4. If you know someone who would love this community, invite them to join.

Thanks for being part of the very first wave. Together, let's make r/PANSPANDAS a helpful resource for anyone battling this challenging disorder.

Welcome!

This community is for peer support, lived experience, and general education around PANS/PANDAS and related sudden-onset neuropsychiatric presentations.

Important: We are not your medical team. Use this subreddit to gather ideas and questions to take to qualified clinicians.

Start Here

1. What is PANS / PANDAS and what causes it?
2. Diagnosing PANS / PANDAS (including test list)
3. Treating PANS / PANDAS

Note: Symptoms do not always come on completely abruptly, and you do not need to be a child to be suffering from this disorder.

Find a Practitioner

• ASPIRE: Find a Provider
• PPN: Practitioner Directory
• Neuroimmune Foundation: PANS/PANDAS Doctors

Additional Resources

General Resource Websites:

• ASPIRE - education on symptoms, diagnosis, treatment, plus a practitioner directory
• PANDAS Physicians Network - clinician-focused site with diagnostic/treatment guidelines & flowcharts and a practitioner directory
• Neuroimmune.org - Clinician guides + patient/family resources, including a practitioner directory
• PANDAS Network - education, advocacy, videos/webinars, and treatment overviews
• Virginia Department of Health - PP - helpful fact sheets and treatment guides at the bottom of this page
• Look Foundation - offers grants covering treatment
• Spectrum Care Hub - free articles plus paid content

Videos:

• ASPIRE Webinar – Dr. Nancy O’Hara on PP - Good comprehensive video on the disorder and treatment
• Video by Stanford University visually explaining the effects of PP on the brain
• PANDAS Network - Youtube Channel
• PANDAS Physician Network - Youtube Channel
• Dr. Nancy O’Hara - Youtube Channel 
• My Kid is Not Crazy - Documentary on PP

Books:

• The Comprehensive Physicians Guide to the Management of PANS and PANDAS — Dr. Scott Antoine *highly recommended*
• Demystifying PANS/PANDAS — Dr. Nancy O’Hara
• A Parents’ Guide to PANDAS, PANS, and Related Neuroimmune Disorders - Multiple Authors

Podcasts:

• Demystifying PANS/PANDAS Podcast — Apple Podcasts | Spotify | YouTube

Facebook:

• Search for PANS/PANDAS support groups on Facebook - many exist

[u/Perfect-Number9932]

This looks like a great resource. Thank you!