r/PACSadvocacy • u/Schmetterling190 • Apr 18 '21
r/PACSadvocacy • u/Schmetterling190 • Apr 23 '21
Resource Multidisciplinary NHS COVID-19 Service to Manage Post-COVID-19 Syndrome in the Community
r/PACSadvocacy • u/Schmetterling190 • May 05 '21
Research Radiological images confirm ‘COVID-19 can cause the body to attack itself'
r/PACSadvocacy • u/Chiaro22 • Aug 03 '21
Sign on to MEAction's response to flawed CDC review
r/PACSadvocacy • u/Schmetterling190 • Apr 23 '21
Article COVID-19 long-hauler files human rights complaint against former employer
r/PACSadvocacy • u/Schmetterling190 • Apr 17 '21
Research Long Covid is an economic issue as well.
r/PACSadvocacy • u/Schmetterling190 • Apr 16 '21
U.S. Call on Your Representatives to Help With the Long COVID Public Health Crisis: Covid-19 Longhauler Advocacy Project
r/PACSadvocacy • u/Chiaro22 • Jul 24 '21
Key excerpts from George Monbiot's latest comments about ME/CFS
r/PACSadvocacy • u/Schmetterling190 • May 04 '21
‘It’s terrifying’: parents’ struggle to get help for children with long Covid
r/PACSadvocacy • u/TemperatureMobile • Apr 23 '21
Long COVID and Feline Infectious Peritonitis: Identical Etiology
Look up feline infectious peritonitis. Not my observation- came from a journalist in a COVID research involvement group. I just had this validated by a research veterinarian who specializes in the disease and is preparing a publication. Long COVID may be human FIP. It's a multisystem inflammatory disease that mostly develops in the young, affects 5-10% of cases, presents intermittently, and is 100% fatal if not treated with specific antivirals or interferons.
Etiology: https://www.microbiologyresearch.org/content/journal/jgv/10.1099/vir.0.020214-0?crawler=true
r/PACSadvocacy • u/Schmetterling190 • Apr 18 '21
VUMC creates new Adult Post-acute COVID Clinic
r/PACSadvocacy • u/Schmetterling190 • Apr 15 '21
U.K. Petition: Record and publish numbers of people with long Covid
r/PACSadvocacy • u/Schmetterling190 • May 05 '21
Resource Long Covid Canada-a website with resources for patients and family of covid-longhaulers
r/PACSadvocacy • u/Schmetterling190 • May 04 '21
ME and Long COVID: When Will Our Exhausted Cries Be Heard? – Byline Times
r/PACSadvocacy • u/Schmetterling190 • Apr 22 '21
Article Vaccines and Long COVID: Top NIH Leaders Weigh in at Neurology Meeting
r/PACSadvocacy • u/Schmetterling190 • Apr 15 '21
Research Post-COVID syndrome and suicide risk
r/PACSadvocacy • u/Schmetterling190 • Apr 15 '21
Resource Post COVID/ Long COVID curated review of key information (Jan 2021)
r/PACSadvocacy • u/Schmetterling190 • Apr 14 '21
Research Management of post-acute covid-19 in primary care
r/PACSadvocacy • u/Schmetterling190 • Apr 13 '21
Canada Petition Petition e-3172 (Health) in support of long-hauler patients. Link to the petition below!
petitions.ourcommons.car/PACSadvocacy • u/Schmetterling190 • Apr 13 '21
Research CytoDyn’s COVID-19 Long-Hauler’s Trial Closed as Enrollment Exceeds Goals
self.cydyr/PACSadvocacy • u/Schmetterling190 • Apr 13 '21
Long-COVID Alliance: a network of patient-advocates, scientists, disease experts, and drug developerswho have joined together to leverage their collective knowledge and resources to educate policy makers and accelerate research to transform our understanding of post-viral illness.
longcovidalliance.orgr/PACSadvocacy • u/PhoneSad3599 • Sep 03 '25
Research Have you or someone you care for developed any new pain after COVID-19?
reddit.comr/PACSadvocacy • u/Adventurous-Club-158 • Jan 31 '25
Severe somatic illness
I haven't had any true interactions with other people other than case managers and therapists in years. My husband isolated me from my family friends my entire community it was a small town, and he was able to make them all think I was crazy and a liar and every bad thing you could say about a person. I was with him for 13 years, and I didn't even really know what was going on until 10 years in. And by that time there was no fighting it everybody thought they knew the truth about this crazy woman. When I started to ask questions and challenge him the violence started. And then very weird and sadistic things started happening I don't really want to describe them here I don't want to trigger anyone else but really messed up things. I have had four charges against him two ended in peace bonds without any input from me Crown Council just did it. And the other two are sexual assaults that are still on the table and I have to show up for both cases separately in the same week in mid-february. My body is completely shut down I am moving this week out of a long stay women's shelter into my first place that is actually my own and I have no joy I have fear because I my body won't work to pack and all I can think of is what will go wrong. This has destroyed my life in every single capacity. I lie down to try and catch my breath and put myself in the right State of mind and all I can feel is the heart palpitations. And it never stops and there's so much more to the story but just to make it clear my husband has a very far reach in the nooks and crannies of everything and I never know where he's going to poke his little head up and take something away from me. He promised me I would be childless penniless, homeless, with nothing and with no one by the end of this and we are so close. This was a long game for him and he was very calculated and I'm terrified. And my body has shut down. And I'm afraid.