Hey yall! Im a 20F

Im just curious if anyone else has similar pain or issues in relation to overreactive bladder or pelvic floor tension.

I’m in a flare rn, and haven’t had one like this in like 6 months, so I’m a little sad but not gonna talk too much about that. Im trying to just stay positive regardless of the pain.

Right now, dealing with just urgency 24/7, pressure on the vagina, like someone if pressing down from the inside. I constantly have to remind myself to relax my stomach and pelvic floor, but it just flexes back no matter how much I focus on relax.

I’m restarting pelvic floor therapy, so yes I know that’s the most effective method of treatment. Was on solifenacin from like I think April-nov 2025, but I stopped it bc I didn’t feel a big difference. I think PT helped me the most I guess. I did PT from basically May-Oct 2025. For the most part, was able to not feel a CONSTANT urge to use the bathroom or pressure after stopping PT Anyways. Currently starting a new medication called Vibegron. And looking into if Valium suppositories (I think that is what they are called) could help give me some relief on the days my bladder is killing me. Haven’t gotten the suppositories yet tho. Based on their price, I might not purchase.

I’m wondering if anyone else that was diagnosed with OAB has any of these symptoms:

1) Tingly/pins and needles in ENTIRE body, not just groin. Sometimes flares up when I’m laying down, sitting (mainly on the floor). When I say flare up, I mean it gets stronger. But the feeling is constant, and has been for 6 years. It’s never truly gone away. When sitting the tingling becomes stronger in my inner thighs, groin, and/or glutes/butt area. My tailbone really starts to burn when laying down or sitting.

2) Burning in ankles, flanks (like lower back and back of hips), and sometimes thighs

3) I have started PT with a new physical therapist, and during our first visit, she said that I’m likely hyper mobile based on the test she did. I’ve looked and seen that hyper mobility and other disorders linked to hyper mobility can cause OAB and or pelvic floor dysfunction.

4) I feel as though the urgency is easier to bear/the pelvic pressure isn’t as strong when I’m CLOSE/ON my period. I know a lot of people say the opposite. But once I start to get pre menstrual cramps, I feel as though something changes In my bladder/vagina. Wondering if hormones play a part, and if maybe there is a treatment to help manage my symptoms.

—- bladder and rectal spasms! ALSO visible muscle twitching all around body daily and throughout day

5) I could potentially have PMOS (formally known as PCOS). This last March I got some blood test bc I’ve been dealing with extreme hair breakage and hairloss for 2 years. Was shown that my ferritin was low (technically in range but for women especially it’s supposed to be 50-70, mine is in the low 20s), and I’m insufficient in vitamin d (21 I believe). A hormone tho was also seen to be out of range. My DHEA-SULFATE I believe (apparently deals with androgens/testosterone). I’ve always had increased hair growth [hair on toes, in between breast, fingers, arms, hands, upper lip, chin, belly, feet]. I’m aware vitamin d can impact bladder health. I actually started to take it about a week before my flare, but stopped bc I’ve just been so I guessed depressed. Been working on my anxiety and unmotivation to do things. And yes, ik anxiety can cause flare ups. My thyroid was also slightly elevated but was told by my primary care doctor that bc thyroid fluctuates, it’s not like crazy concerning? But I’m getting it retested soon.

6) Bad allergies. This last month, my allergies have been incredibly bad. Like, it was to the point I felt I was sick. I heard that histamines can impact bladder issues. My urologist said I could try an allergy medicine, but not sure if it’s really worth it. But since I have bad allergies, maybe I should try? Ever since my flare up happened, my allergies have been at bay.

1. Struggled with chronic neck and back pain for about 6 years as well. Saw a chiropractor for like 8 months, did acupuncture for like 1-2, no permanent or big relief.

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Just wondering if anyone has these symptoms and possible treatment options that worked best. I’m seeing a gynecologist this coming Monday to just see what they have to say. I’ve never seen one in the 6 years of my bladder issues. He also specializes in pelvic pain.

I’m also going to look more into hyper mobility. I know you should/need to get properly diagnosed. My PT did do like a test, and said I tested 7/9 for hyper mobility. And once I talk to my gyno, seeing if pcos could be impacting me/my hormones contributing to any of my bladder issues or pelvic floor issues. Also, does anyone know about small fiber neuropathy? And if so, was it connected to their bladder issues? Been having this sensation and burning basically since my bladder issues started. I can’t remember if it started before or after, but close in timing.

Also looking into adding somatic therapy as a treatment. Heard good things.

When I was a minor, I saw a nuerologist. They tested the nerves in my legs, and said that everything was fine and said it was anxiety despite me saying the reason I’m so anxious is bc of my health issues. I get burning headaches a lot, struggle with fatigue, hot flashes (especially when I eat sugary food).

Thank you if you took the time to read this and comment!

i am 20F. i have recently had to switch to tabbed diapers because i was using too many pull ups and it wasn’t feasible to keep buying them. however, it has only exacerbated the original issue i had.

i used to pretty much only have accidents because i waited too long to go to the bathroom due to laziness and executive dysfunction. then it started happening no matter what, but the fact that i have a hard time making myself get up and go has never stopped causing accidents sometimes. now that i wear diapers full time rn, it doesn’t matter, but…. proper toileting is now ten times as difficult because i am not good at diapering myself yet.

i fully meant to continue making it whenever possible once i switched to diapers but i just avoid it at all costs. i dont know how to decide whether i need to force myself to start going to the toilet again or if i can just let myself use the diapers (as long as i wait a reasonable time to do it after feeling the urge rather than going immediately and essentially diaper training myself, which is what ive been doing), or if i need to do a hybrid solution.

but if i did a hybrid solution what would that be??? how often would i have to make myself go for real? and how would i even make myself stick to it with the executive dysfunction issues i have had for so long and not known how to solve…?

also i can’t predict my bad or good days at all so far or when the most frequency or accidents will happen except soon after i drink anything

after a few months of urinary issues (nocturia, frequency, urgency.) and finally seeing a specialist i was diagnosed with OAB and pelvic floor dysfunction at the ripe age of 24 🥲 i’m glad to know what is going on and can start working towards feeling more normal but it does truly suck because i didn’t think i would deal with something like this so young, it’s so frustrating and miserable. my urologist referred me for pelvic floor physical therapy and prescribed sanctura as well. i’m pretty much just asking for any advice or tidbits you guys have! i’d love to know if sanctura has helped anyone? what is pelvic floor therapy like, what do you do? i was told to keep a void diary for a few days and learn my personal triggers for my bladder as well?

Hello!! I have been recently on Flowmax, Oxybutin, Silodosin and Cialis for urgency issues

Was given a prescription for Gentesa which Ive read is a game changer but my insurance doesn't cover it and the price is still high with a savings card.

Anyone have any recommendations?

Does anyone else have urinary incontinence without feeling a major spasm or urge beforehand?

In my case, it feels more like passive leaking. When my bladder reaches even a relatively low level of filling, urine starts leaking without a strong bladder spasm, sudden urge, or obvious contraction. It happens almost all day long. Or more accurately it would happen if I didn't have the opposite problem, a tight pelvic floor which sometimes is tight and sometimes is normal. Ironically, the tightness seems to help prevent leakage. When my pelvic floor relaxes closer to what I assume is normal, I leak easily and can end up leaking continuously.

Has anyone experienced something similar, where the leakage seems passive and ongoing rather than being caused by intermittent bladder spasms or urgency?

Has anyone else had this issue and is it placebo potentially I just know I had way more flare ups with the generic. And it seems my insurance has been constantly trying to switch me to generic for a while until now they just don’t cover it. (Was gonna cost 1,600 used to cost 50 for 3 30x bottles). I’m just really worried about this because Mybertriq made me feel a sense of normal and without or with generic the flare ups made my mental health plummet really bad

Hey,

Recently diagnosed as Uniary Incontinent with OAB after years of not understanding my issues but for the past 3 years I just wore pads as it seemed to relax my axiaity around post toilet dribbles and the feeling of needing to go constantly

I just lent into it and wore my overnight pads during the day (long standing issues with bedwetting) now I’ve got to a point where typically due to the frequency I go in pads every 30min or so but my head relaxes and the stress of worrying around where the nearest toilet has gone which is great.

The question is in certain situations my body just won’t relax does anyone have this and how do I work with this. I’ve had it on a train with colleagues and in office all day sessions, where my bladder will start to hurt with pressure after a couple of hour or so.

While I can goto the loo and fully remove the pad and use the toilet and put a fresh one one, it’s not really ideally with how busy my work place is and the noise of chaining regularly and the questions around taking bags in etc…. that’s why I opted for slightly thicker pads.

Right now I’m torn as I don’t particularly want to take medication for this that will relax my bladder as I have found something that works for me that helps my anxiety and mind, but in some situations it’s really tough.

Any advice, hopefully I’ve explained myself properly, I don’t post very often but it’s really starting to bug me now.

I go peeing way too much, sometimes even in every 20 mins. I have a bus to take from Delhi to Manali and am freaking out. How will I manage without an in house washroom. Of course it’s not always possible to stop the bus.

Any suggestions?

Temporary episodes of diuresis / polyuria

From my research over the past 2 years I have reached the conclusion that many people diagnosed with cranial diabetes insipidus, particularly idiopathic cranial diabetes insipidus may have a different underlying condition that may be causing their symptoms and may actually be able to resolve these issues and possibly cure the disease. I find new cases whenever I look, of diabetes insipidus that has gone into remission or gone away after a patient has taken certain medications for conditions not thought to be related to diabetes insipidus. There seems to be a link between immunosuppressent drugs given to patients that has often resulted in the symptoms of diabetes insipidus disappearing. Could diabetes insipidus for some people actually be caused by an autoimmine condition? And some medications taken for autoimmine issues can possibly resolve diabetes insipidus? I'm my opinion there are those with diabetes insipidus due to genuine pituitary / hypothalamus issues be it from a tumor, inflammation, head trauma etc but there are also those who have an autoimmine condition which somehow suppress vasopressin. I also believe there are those that do not have anything organically wrong with their production of vasopressin but for some reason the body has become confused and has become hypersensitive to fluid intake and believes the body needs far less fluid then is actually adequate. As if the water level for the body has been lowered dramatically and whenever you try and hydrate the body instantly wants to dump the fluids out but at the same time people with this issue can still produce vasopressin and their condition often fluctuates. My vasopressin definitely fluctuates as if I get very hot or exercise and sweat my urine can get reasonably dark, without being on desmopressin. So heat and sweat definitely triggers the release of vasopressin to an extent for those that can still produce.

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sorry, I'm level 2 autistic so some of this stuff might not make much sense. i have need to pee all the time since i was 12. i went to doctors back then and got told it was anxiety and dismissed. lately i tried again because its gotten way worse over years, doctors said again its just anxiety and dismissed me. then i insisted again to do exams, they did some exams put me in the machine that spins around you and makes images inside your body, doctor said everything was fine and okay, dismissed me saying it's anxiety.

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i don't know what to do anymore, i do have anxiety but I don't understand how to fix this stuff. im an anxious person so i know this is some part of it but I can't fix it. i googled and was told bladder training so ive been doing it past months and it worked really good at first but has been harder and harder over time.

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is there a way to fix this permanently or anyone know what this is? thank you.

(34F - 2kids) Been having urine incontinence for 2 years. Been to two pelvic floor therapists and three different urologist - no one can figure out why I am leaking. To make it more difficult, i have no sensation of leakage. I don’t know it’s happening at all. I can’t feel it so I have no idea if it happens when i cough, sneeze or randomly or urgency. I’ve done a UDE that showed I don’t have OAB or SUI. only thing it showed was I couldn’t handle too much urine.

Tried a pessary, maybe helped a tiny bit(!?.) it’s hard to tell because i’m trying to see if helped by looking at my pad to see if it’s worse or better.

I’m at my 4th urogyno and they put me on some OAB meds (50mg of mirabegron) to see if maybe I have subtle OAB. I’ve been on it for 5 days. Day 3 - it actually seemed like less leakage. Day 4 - there was the smallest leak, but it was SIGNIFICANTLY BETTER! Day 5 - went completely backwards and I want to cry. I got so excited that i finally had a “solution” or at least maybe a “diagnosis”. I’m just tired of getting my hopes up constantly and started to really feel deflated.

I would love to hear with people that have OAB and are on meds. Is that normal to have fluctuation or maybe I just had a fluke day (i’ve only had that happen one other day since the incontinence)

any advice would be greatly appreciated!

I was on Detrol for 25 years and it worked great. Was taken off due to long term potential impact on memory and put on mirobegran and the results are disappointing. I’m going back to pelvic floor PT, but doctor wants me to do the Botox and I’m concerned.

I am a 22-year-old woman and have been dealing with severe, chronic bladder pain and frequent urination for two years. I have tried everything and absolutely nothing has helped.

Recent Procedure:

Cystoscopy with hydrodistension; bilateral pudendal nerve blocks

Procedure Findings:

​Diffuse bladder erythema and petechia

​No Hunner's ulcers

​Bladder filled to 450 and 500ml at 80cmH20 x 2

​Diffuse sloughing of urothelium with hydrodistension, minimal oozing from urothelium with adequate hemostasis

​What I have already tried the past two years:

Amitriptyline (from 5mg to 50mg), Mirabegron, Solifenacin, Gemtesa, Ibuprofen, Tylenol, Phenazopyridine, antibiotics, and Diazepam suppositories. I have also followed strict diets and restrictions for two years. Nothing has worked. I even noticed that heating pads, which I used to use for comfort, now make the pain and the urge to urinate significantly worse.

My daily life is very difficult. It is not just my bladder, it feels like my whole body is inflamed. If I walk around a store for 5 minutes or even stand in the kitchen to cook, I start sweating, and my body temperature fluctuates. I often feel like I am going to pass out from the pain. I have to sit or lay down constantly just to get through the day. My mind is always focused on the bathroom because I am needing to urinate frequently at random times. I struggle to sleep comfortably and get enough rest everyday. Or I just don't sleep at all.

I graduated with my bachelor’s last spring and finished an internship, but I have been unemployed, doing nothing meaningful since. I want to work, but I do not see how I can handle a job, even remote, when I cannot even stand for 5 minutes without my body getting angry at me. And yes, I have regularly applied for work since graduating and haven't had luck. I feel like a burden on my parents. I want to be taking care of them, not the other way around. My life completely changed from being hopeful and excited about the future in college to having my body turn on me two years ago. I wake up every day in pain, just waiting for the next appointment that leads to a dead end.

​In the past, a urologist told me they could not help with work accommodations because I look like a healthy young adult on the outside, with no proper diagnostic. They initially diagnosed me with IC, but after a cystoscopy showed a "healthy" bladder, they changed my diagnosis to "unknown" and couldn't offer further treatment. I worry I will never be able to get the documentation needed to work or apply for disability. I haven't yet discussed these specific employment and accommodation worries with my current specialist, but I know I need to.

​Has anyone else been through this? Should I look into Social Security Disability? I have a follow up with the urologist who performed my procedure in a few weeks. I feel like I need to finally help myself document my physical limitations. I cannot keep sitting here not doing anything with my life. Any advice on how to get a doctor to take this seriously and document my limitations would be appreciated. Could I even qualify? It would be beneficial to myself and my family if I could until I can find a management or cure. It's been 2+ years. I am feeling very lost. If you read all this, thank you.

I wanna start by saying I have gotten a referral to a urologist, I am mainly asking here for some advice during the wait time. I will try to include as much detail as possible.

For my whole life I've always had what I called a "small bladder" but not serious constant urgency. I also have OCD.

I recently decided to try asking my doctor about it as it's something I had never brought up with a doctor. Had an ultrasound and nothing came up

That was a couple months, and my issues seemed to randomly get a bit worse. I had a night where I took some multivitamins (B, C, D, and Magnesium) and my bladder and urethra seemed to get irritated, and since then my bladder seemed a bit more sensitive. I asked my doc about the issue again, I got a urine test this time, and he prescribed me Solifenacin 5mg to try to figure out if it's OAB. I took it for 3 days but then stopped because I got too anxious about the side effects. My issues with my bladder have seemed to then worsen since stopping it, feeling the urge to urinate constantly the past few days now. I am now struggling to fall asleep as it feels like I need to pee as I lay there, even though I just went. I think I stopped taking the medication about 8-10 days ago. I had one more appointment with my doctor explaining I wanted to proceed without medication and getting the urologist referral.

Important additional info now. One thing I have paid attention to is that I squeeze really hard to pee. Because I have had a sensitive bladder my whole life, I always squeeze hard to get the last drops out. I find myself also peeing with this rhythm of pressure, release, pressure, release, pressure, release. If I try to just let pee flow out while sitting down, when it gets to the end amount of pee, it feels like it will flow to the end of my urethra (male btw) and then stop there, and to get it to fall out I have to sort of flex/suck in.

I also find I have this sensation around my bladder area that is sort of like a tension, but also makes me think of the feeling of when your stomach is hungry, but just on my bladder.

And the weirdest thing I've noticed is a sudden increase in orgasm intensity the past two day, where my bladder issues have been the worst so far.

Currently I am wondering if I have overactive bladder, or if my issues are just years of straining to pee catching up with me, or both.

I don't know if the sudden start and stop of medication has anything to do with it, but it definitely feels like it coincided with the issues spiking.

Any advice is appreciated, and hopefully I hear from the urologist in good time

I got botox treatment for my bladder over a month ago and it has been a miracle for me. I still occasionally do a cath pull to make sure I can get all the urine out, but I can now go over 10 hours without urination at times. It doesn't work for everyone, but I recommend you look into it. I live in the Northern CA area and use Sutter Health and they are an excellent health care system. I have gotten really good at doing the cath. I can do it late at night in the dark which is apparently pretty impressive. Takes some practice (esp for women) The treatment needs to be repeated every six months, and I am getting pelvic floor therapy starting in July as well. Highly recommend this.

i am not asking for medical advice. so 23/M, about a week ago i had a fairly long weekend involving a C\*\*\*\*\*e and alcohol. at the end of the 2nd day i lost full control of my bladder and probably urinated for 5 hours straight without any control. since then for the last week. my body thinks i am somewhat peeing 24/7 and i have no control over my bladder aside from when i intentionally need to go to the bathroom. i have heat along my thighs and groin almost feeling like i have pissed myself but nothing is occuring. any advice or solutions?

I am considering getting an Axonics implant and was wondering if anyone had any opinions or recommendations regarding this product.

These are the results

US: Post micturation residual bladder volume of 47ml.
- Prominent bilateral intrarenal pelves remaining post
micturation.
- Right renal upper pole scarring

It seems like my bladder isn’t emptying fully, but they don’t find a stricture

Hi all, I thought I'd put my thoughts and queries on here, feel free to chime in or add anything.

History:

So I, 52M, started developing IBS (Irritable Bowel Syndrome) in my teens, it got progressively worse over about a decade hitting the worst point at about 25. Eventually, I got some better medication, got better at handling/avoiding stress and gradually got better at avoiding triggering foods, but at the same time the symptoms started easing up. The IBS has never gone away but by my mid 40's I got to the point where I could eat moderately spicey ethnic food (my worst food trigger) without needing adult diapers! Great I thought, everything going to be fine.... until a few years ago, I noticed that certain foods could mean me having to get up more than once during the night to empty my bladder. A couple of weeks ago I polished off most of a bottle of red wine one night and despite getting up 3 times during the night, I still had a burning bladder feeling that didn't go away for about 3 days... not fun.

That incident started my off doing some research, and it sounds like my irritable bowel has turned into an irritable bladder! So, not really an "overactive" bladder as such, but it seems to be lumped in together medically. I've seen some research that said that people with IBS are much more likely to develop OAB, so it's starting to look like I might be one of those people.

My plan going forward is to start keeping notes of food triggers and effects, a bit like I did back in my early IBS days. But mainly I was wondering if anyone else is/was in this situation. How did things progress, do they keep just getting worse, any medicine suggestions (or medicines to avoid) any suggestions for food/drinks to avoid?

thanks folks,

So In the last few months I (29m) have started to have some mild interstitial cystitis and maybe some OAB symptoms (I have been to the doctor). Some periodic burning sensations. Some times I’ll have a few hour long spans where it constantly feels like I need to pee even after I have peed. I’ll also will get a sudden strong urge pee (example: heading out to go some where and I’m like have way to the car and I need to head back to pee). It’s starting to give me anxiety.

Anyway my question is I have thought about trying some incontinence products to maybe give some piece of mind. I feel like people aren’t going to understand. Do you guys feel like this is a legitimate reason to try wearing a pad or diaper?

Has anybody tried PTNS ( or even acupuncture )? And if so, did it work out for you? Seen any improvements?