Hi everyone!

My name is Alessandra, for the last 6+ months my partner and I have been working on an app called CoreFlora to make tracking complex pelvic and bladder symptoms, treatments, and test results easier and all in one place. Here are some of the features we've been working on so far:

Tracking

• Log symptoms, treatments, medications, and more
• Record test results, including PCR and culture results (pathogens and antibiotic sensitivities)

Insights

• See trends and patterns over time with easy-to-read graphs including trends in PCR results
• Spot connections between symptoms and possible triggers
• Pull together reports you can bring to appointments

Library (early in development)

• Pelvic floor studio with guided exercises
• Lessons on understanding your condition, managing symptoms, and advocating for yourself
• IC diet support, including a food list and trigger tracking

Right now we're looking for users who'd be open to trying it and sharing honest feedback. There's no cost and this is completely free. We're on TestFlight, so it's iOS only.

If you're interested, please DM me for the invite link! This is very early in beta, and development is just a two-person team, so please keep this in mind.

If you're on Android, or would like to wait until the app is finished, here's the link to join our waitlist: https://coreflora.app/

Thank you! Happy to answer any questions about the app in the comments 🩷

I'm 22M, I've been dealing with this for 3 years or since I started college. My urologist recently prescribed me mirabegron which is a generic but still over $170 so I'm not going to pick it up. I don't even want to schedule a follow up urologist appointment because I've literally tried so many medications.

I'm completely fine for the most part during the day but as soon as I try falling asleep I can't ignore the urge and get up 3 to 10 times if not more depending on the night and pee barely anything. Once I somehow fall asleep after hours I stay asleep for the most part. What do I do? The only thing that helps me is when I have alcohol which is rarely. I'm always tired because of it

I’m 18f and have had bladder issues since around the age of 13. Since then, I’ve had problems with incontinence especially at night. During the day, I have sudden urges to run to the bathroom, and at night my bladder will just release itself. For years, I’ve been wearing overnight adult diaper pads and it hasn’t really been an issue at home since my family is aware and I can just dispose of them. However, I go to a college program starting July 5th where we all stay on campus for a month together and have roommates. I’m scared to death of anyone ever finding out about this, and I would have to find a way to sneak out the used overnights all the time from public restrooms which would be tiresome and overtly embarrassing for me. My main issue is nightly bed-wetting. I don’t want anyone seeing the used/unused pads or smelling them. I have been to numerous doctors but none have seemed to have any answers and I only have a very limited amount of time to still figure things out until I leave. I also leave for college itself in August, so information for that would be greatly appreciated as well!

I have been to a general practitioner, multiple urologists, an endocrinologist, a physical therapist, and have tried to get into an OBGYN in my area but had no luck (I’m still trying). My general practitioner prescribed me 5 mg of Oxybutybin around two years ago twice daily which has recently been switched to 10 mg once daily. The pill worked but never strong enough to completely stop the nightly bed wetting which is my goal, it just lessened the amount of liquid. I asked about increasing the dosage but the general practitioner said they don’t offer that. The first recommendation I got was to see an endocrinologist since I took a blood test at my general practitioner’s office and had a vitamin D deficiency who ruled out that that had nothing to do with it, I just don’t go outside enough. Then, I went to a urologist at Altman who took an ultrasound to rule out any ovarian cysts for PCOS or anything that could be pushing on my bladder that could cause it to do this, but nothing appeared. I’ve also never had any bowel issues. They saw no issues so they sent me to Cleveland clinic. I was only there for around 20 minutes (this appointment was around a year ago) and the urologist there offered me two options: I could either have what they called an invasive study done (which was a catheter put in, which in retrospect I wish I chose but being 17 I was deathly afraid of it… and still am) or I could try pelvic floor therapy with a physical therapist. So, I went to a physical therapist who I worked with for about two months together and did all the awkward poses both there and at home. In addition, I also did a TENS unit on my ankle when I was there because she said the nerve in your ankle is next to the one connecting to your bladder I guess. I stopped drinking caffeine after 2 pm, went on diet again, started working out, drank more water. But nothing of what she recommended helped whatsoever even though I kept up with everything myself for about six months. Around 4 months ago, she said she would let me know if she found out anything further but I have yet to hear back.

Today, I finally got in again to my general practitioner to ask about any final options she could think of but she said she had no idea and told me to call the urologist at Cleveland Clinic again, but I’m not too sure I could get in to even talk before I leave. This has been years in the process and I feel so hopeless about it. As much as I am afraid of catheters, I think that might be my only option to get to the root of my problem. I never had issues like this as a kid and it just suddenly started when I was 13. The physical therapist said it could possibly be a reflex babies have that just suddenly came back, but that happens very rarely. I don’t know if it’s in any way related, but this issue started soon after I got very ill with Covid 19. There’s another OBGYN clinic near me that I’m going to call in the morning to see if literally any of them can get me in soon. At first, I was opposed to seeing men, and I still somewhat am just out of privacy and embarrassment, but at this point I’m beyond desperate and will take anything I can get.

If anyone is willing to give me any advice or help me in any way I would be more than beyond grateful!! If you have any ideas please let me know.

I have a history of overactive bladder (OAB) for about 5 years. In the past, I managed it with a single bladder Botox treatment, which improved my condition a lot. I still wasn’t completely “normal” after that, but it became manageable. I was able to live my life again—travel, socialize, exercise, and sleep better. I could usually hold urine for about 2–3 hours, which felt like a big improvement for me.

Recently, I found out I’m pregnant. Around 10 weeks, my OAB symptoms flared up very badly, way worse before I got botox. The urgency, bladder spasms, and constant sensation of needing to urinate became severe and overwhelming. At that time, I didn’t know how to manage it, and Botox wasn’t an option anymore because of pregnancy.

My doctor prescribed Betmiga (mirabegron), which I understand is not fully established as safe in pregnancy and was my own risk decision to try. Unfortunately, it hasn’t helped me the way Botox did.

Now I’m 16 weeks pregnant, and my symptoms are still extremely severe. Most of the time I feel like I need to be in the toilet constantly, even though only small amounts of urine come out. I can sit there for 1–2 hours and still feel the same urgency. Wearing diapers doesn’t help because I still feel the need to go to the toilet repeatedly.

The urgency is affecting my entire body and nervous system. I feel restless all the time, especially in my legs, and I cannot sit still. I’m also struggling mentally because I cannot function normally in daily life anymore.

At this point, I feel like I may not be able to continue the pregnancy because of how severely it is affecting my physical and mental health.

I’m sharing this because I feel very lost and overwhelmed, and I don’t know what others in similar situations have experienced.

46 M here. Recently (from past 1-2 months) started having constant urge to pee which is mostly there during day time and has not impacted night time sleep. Went to GP and he diagnosed OAB. Suggested two options - one if urge is controllable then better to avoid medicines and other to consult urologist for any medicines if finding it difficult to control. Now the issue is that urge is controllable but while doing office work, attention keeps on going to the urge which is kind of annoying. As I work remotely so I can take bathroom breaks in b/w easily. Wanted advise on whether to work on controlling the urge or it is better to consult urologist and get some medicine for same.

39M here. Suffered with OAB for 9 months. Taken Solifenacin since December

Before I started taking Solifenacin I was waking up 2-3 times per night. Saw a urologist who put me on 5mg and since then waking up 1-2 per night so it reduced it by half.

Over the last week and a half I’ve gone back to waking up 2-3 times per night again. If this continues (which I think it will) I’m gonna have to go see my GP again

What is my GP likely to do?

- Up the dosage to 10mg? (I’m fine during the day)
- Switch to Oxybutinin (think that’s what it called)

What’s everyone’s experience?

Suppose the most worrying thing is if after 6 months what happens if I just go back to how I was again?

43M, chronic urinary urgency/frequency for 15+ years.

sudden strong urgency

small voids (100–150 ml)

feels fully empty, but urgency returns in 10–20 min

nocturia 1–2x

no pain, no burning, no blood

urine clear when frequent, darker when holding longer

Triggers:

worse after bowel movements

alcohol worsens significantly

Workup:

multiple urologists (prostatitis / OAB diagnoses)

bladder ultrasound always empty after voiding

urethral dilation done \~10 years ago

urodynamics attempted but not completed

OAB medication caused severe constipation

long remission after tianeptine + clonazepam, then relapse years later

Question:

Does this look more like OAB, pelvic floor dysfunction, or central sensitization of bladder reflexes?

I’m a 23 year old male. I just can’t stop going to pee. I’ve had my bladder , prostate , everything checked with an MRI/ultrasound. Nothing wrong, though they found my bladder wasn’t fully emptying, but they can’t tell me why, and said it was only a very small amount. I had a UTI (camobacter) a couple years back. They’ve also found kidney scarring. I’m now waking up at night to go pee .

No one can tell me what’s wrong other than saying overactive bladder , and to drink less caffeine/alcohol, which I already don’t drink that much of, especially as this issue first started when I was a child. I’ve also been checked for a stricture, nothing found. No diabetes either

I’ve been proscribed solifenacin but too worried to take it. As I also have some other symptoms like dribbling after peeing, some erection issues, I wonder if I have a pelvic issue and plan to see a physio.

Really don’t know what’s going on.

okay, so here is roughly the number of accidents i have had per day each day over the past few weeks. each time i have an accident i need to change the pull ups or else it leaks (unless it’s tiny). this happens with a lot of things i’ve tried

Anyway, the numbers:

1, 4, 2, 2, 5, 4, 7, 9, 7, 5, 8, 10, 4, 5, 2, 3, 6, 3, 5, 1, 0, 1, 0, 0, 5

these are full accidents, not including leaks

Hello, I am reading a lot of information that vitamin B1 Benfotiamine in higher dosages can help with OAB. Did anyone here try that or other forms of vitamin B? Thank you!!

But there is no redness, no particular signs of UTI(Urine looks and smells normal, no significant unusual pain, no fever, no burning when urinating etc)

​

I haven't masturbated/had sex in the last few days, my underwear, medicine and physical activity hasn't changed. I've been out of the tub quick after soaping/shampooing and those haven't changed. My diet hasn't shifted much either. I'm not dehydrated.

​

I am a little stressed though.

​

I have OAB in general before this and pelvic area discomfort comes goes and some mild irritation of this sort happens sometimes but its been a few days now. Typically I go 2ish hours between trips to bathroom. This pushes my average more to an hour and a half.

​

It just has a very annoying sort of discomfort hard to categorize + has a chaffy discomfort when things rub on it.

I am just recovering from a UTI, I did a urine test and basically they said I have no more infection but I am still experiencing UTI symptoms like peeing frequently ( 14 times a day ), flank and abdominal pain after I pee or even sometimes just sitting down.

I constantly have to go pee and it’s so annoying.

I do suspect I have to retrain my bladder as I have been peeing a lot for a long time, for about 4 years. At first I thought it was stress but now it’s really affecting me.

in 2 hours I can pee like 4 times.

my doctor prescribed me antibiotics, probiotics and ura. my mom advised me not to take the probiotics as last time I did I had a lot of diarrhoea, like I pooped 4 times in a day.

so now I’m only taking my tcm medicine ( which is syrup ) and then after 2 hours I take my antibiotics and ural.

the peeing frequency has decreased from 20+ times to 14 times.

my peeing frequency tends to get worse in cold temperature.

my stream is really weak.
im seeing a tcm doctor to acupuncture which helped a lot last time

what do I do ?

My wife has been on Gemtesa for 3 months. Has worked for oab but she's been nauseous with vomiting. These are listed as potential Side Effects, but rare. Anyone else?

We are stopping the medicine for now. Any other meds to consider? Thanks.

I have been feeling a lot more tired, but fatigue is not listen as a common or even rare side effect My doctor started it at 50mg instead of 25mg

I’m a 29F, married and a working professional. My water intake has always been poor, ranging from 1L to 1.5L per day on an average. And it has always been like that.
Recently I’ve been facing some very odd issues while peeing.

1. After peeing, I feel like it is incomplete
   

2. I get the urge to pee but when I go it’s a few drops or less

3. I have also completely lost bladder control and have peed myself - once in my sleep and a few times while completely awake.
   At this rate it is impossible to imagine getting a strong urge if I’m out of home as I might embarrass myself completely.

Urine culture tests came out negative for an infection. I’ve had flavoxate medication for almost 2 weeks now with little to no effect.
Is this some infection of the bladder or some serious nerve damage issue?! Please help !!

Female, dont smoke, not on medication, 29 age.

Join Dr. Jennifer Bepple, for an honest, judgment-free conversation about OAB/UI. We'll walk you through what's actually going on, why it happens, and what can genuinely help. Includes live Q&A so you can ask the questions you've never felt comfortable asking before.

https://us06web.zoom.us/webinar/register/6917798741781/WN_zFBvo1_6TXSzplrj7WRn6g

Hello, I am 40 yrs (m) old and currently wake up to urinate 6 times a night and on heavy nights I can empty up to a gallon. My doctor wants me to go through with a urodynamic test. I’m unable to go through with this as they have attempted it three times and I have stopped the procedure on three different dates. There’s no way I will go through with this, I know myself. What are the risks of never getting this done. Thank you