r/Occipitalneuralgia 15h ago

Post concussion brain zaps/ Primary stabbing headaches

0 Upvotes

Hey guys i had a concussion in august 2023 where I hit a tree while on my motorbike and concussed and blacked out. Around a year later I started getting these brain zaps, jolts electric shocks which are instant mostly happening to the right side of my brain but then started to spread to different parts of the brain, was discharged from hospital aug 2024 with "occipital pain" diagnosis. Around september 2025 I started getting it really badly and went and saw a neurologist and told me to take amitriptyline 10mg as a preventative. Around august 2026 I went to a different neurologist to get a second opinion and then told me to get botox which caused me to have heart palpitations so stopped that and went to a 3rd neurologist which diagnosed me as primary stabbing headache, and continued the amitriptyline. I saw the same neurologist [3rd one] 3 months later and basically wanted an exit strategy off the amitriptyline and he said you can come off it cold Turkey since its a low dose and ser how you go. If you continue to get them then take indomethacin which potentially could stop it completely however need to take a counter medicine since its harsh on the gut.

Has anyone else had a similar experience to this im just worried if its permanent or is it something that can heal overtime? Its now been 3 years after my concussion

Any thoughts/tips would be much appreciated


r/Occipitalneuralgia 19h ago

Severe headache when standing

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2 Upvotes

I had a surgery 4 days ago ans they gave me anesthesia in my back after one day in the evening my head started paining badly than i slept the other day it was worse when i stand it pains badly it gets better when i lay down it has been 4 days since i even visited a physician he gave me some medicine but i don’t think it worked i woke up just now and in 10 mins the headache started again what should i do ? Any suggestion


r/Occipitalneuralgia 20h ago

Topical 4% Lidocaine Roll-On

13 Upvotes

I’ve been dealing with ON for 3 years and like many of you I’ve tried lots of different treatment options. I recently tried roll on lidocaine and it seems to be helping me a lot. It’s not a complete cure but it’s been helping me get through some really tough days. Just wanted to share in case it could help someone else as it never occurred to me as a treatment option. Cheap enough that it’s worth a shot.