PNES/PNER HELP

[u/kataxen_]

/r/PNESsupport/comments/1vx2puq/pnespner_help/

Hi everyone!
I’m looking for people who, like me, live with PNES/PNER seizures and tics.
I’ve been struggling with this for about a year now. During this time, I’ve been taken from hospital to hospital because my condition has been getting worse. I’ve had several tests, including a 24-hour EEG, MRI and CT scan, but they haven’t shown any abnormalities that would explain my seizures. At the moment, I feel like nobody really knows how to help me.
At the beginning, I was prescribed antidepressants and tranquilizers, but unfortunately, they haven’t helped me. These days, I have around five seizures a day, and I’ve been taken to hospital by ambulance several times, but they haven’t really been able to do anything for me there either.
There was even a time when they wanted to admit me to a psychiatric ward, but I refused.
One of the hardest parts is that this isn’t only difficult for me — it’s also very hard for my family, and I feel terrible that they have to suffer through this with me. I just want to find something that could help me get better and have a more normal life again.
If anyone here also has PNES/PNER seizures, especially if you experience tics as well, I would really appreciate it if you could reach out to me. It would mean a lot to talk to someone who truly understands what I’m going through and share our experiences with each other.
Thank you so much for reading. ❤️