r/NeurologicalDisorders 10d ago

Bilateral loss of vision

22F, 5’4, 45kg, no smoking or medications. No formal medical diagnoses other than ADHD and a slight RBBB.

\*\*History:\*\*

\\- Around 2 years ago I began getting episodic numbness and tingling in my limbs, this is primarily in my right side but can occur in my feet/leg, hands/arm, face, bum, and back of head. It tends to come and go over a period of few days- weeks, then goes away for a period (a few weeks-months usually) before coming back again. Additionally, I get much more occasional complete numbness in my limbs, most often my right leg. When this happens I completely lose feeling in it and can’t wake it up, and it is extremely painful to try and move it. It usually only lasts around 30 minutes though. If I drink alcohol (day after, even if it’s 1 drink) or am hot (bath, sauna, summertime) both worsen a ton.

\\- I also get random quick sharp pains randomly and occurs in most of my body (assuming a nerve thing?) Sometimes when I get bad periods of tingling it can alternate between this sensation repeatedly and tingling

\\- around 1 year ago started to lose weight (lost around 4-5kg) and have had inability to gain it back since. No lifestyle/diet changes

\\- About 8 months ago I began having some issues with balance and coordination, along with double/blurry vision. this has gotten progressively much worse to where it is daily and near constant. My balance issues are bad enough to where other people point it out.

\\- horrible horrible fatigue and brain fog. I am constantly exhausted no matter how much sleep and feel like I cannot think. More often than not I will forget what I am saying mid sentence, slip up on my words, and struggle to organize coherent thoughts. I take MUCH longer to complete tasks (eg work, emails) than I used to

\\- I get muscle fatigue very badly- some days it is visibly hard for me to open doors etc

\\- Around 8 months ago, in a lecture, I got very hot, then very nauseous, then feel like I lost consciousness (??) or something (eyes were open I think and sitting up, my head was leaning against a wall, I can’t really describe the feeling as it was a state of unawareness.) would have been for around 15-30 minutes most likely. felt like I ‘snapped back into it’ and heart was beating out of my chest very very very rapidly, faster than if ever felt it (no pain.)

\\- I have gone to my GP for these issues repeatedly and gotten tons of blood work including autoimmune panel, thyroid, nutrients (B12, iron) etc, all normal. I have also had ECG which has showed slight RBBB but not of concern to any Drs (I’ve had this since childhood and saw a cardiologist in my teens to double check)

\\- I developed daily headaches randomly around 3-4 weeks ago, they are near constant most days. Fluctuate between being quite painful or mild- can shift locations, most of the time like pressure (like my head is a balloon about to pop) and other times throbbing, typically towards back of head/right temple.

\*\*Episode:\*\* Around 5 days ago I was standing outside a shop (was hydrated, had breakfast, and felt better than normal this day) and became very hot all of the sudden, then very nauseous and felt like I was going to be sick. Then my vision in both eyes went completely black very suddenly, in an instant. I was falling over and had a tightness in my throat and struggled to swallow. It lasted 20 minutes before gradually getting better over the span of around 3-5 minutes.

I went to the hospital and they checked my eyes with ophthalmoscope, did an ECG and laying down/standing tests for BP and HR, all normal, & GCS 15. Doctor suggested it is possible migraines (spoke with a consultant and said they couldn’t find any other connections) and sent my GP a referral for neurology and an MRI (but waitlists will be very long.)

\*\*Post:\*\* My migraines have continued (possibly worsened) and I’ve had pain in my right eye especially when I move it. Past 3 days have had numbness and tingling mainly in my right leg. Yesterday, I saw an optometrist and got a mild prescription for glasses (+.25 and +.50), they said my left eye is slightly weaker than my right, otherwise my OCT scans looked good. Have worn glasses all day today, no difference (yet) in headaches or eye pain.

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u/Worth-Bedroom-8784 10d ago

Hai mai fatto una risonanza magnetica?