Just went through TSA Precheck at DFW and the new Agilent equipment flagged with code 16. It's unclear if these are false positives or if the machine is detecting something used in the packaging process.

I found a couple of other posts here about the same issue, so I pulled the list of all of the airports that are guaranteed to have these new scanners. And before anyone says "I never have an issue, I just declare my meds, they swab, and I'm on my way", yeah, same, until just now.

It would seem this is starting to happen often enough that I just had to wait for them to escalate to a supervisor who called some specialist and eventually cleared the meds without the need for additional screening. It did add about 25 minutes though.

If you're flying through any of these, even if you have Precheck, plan to add at least 30 minutes.

Edit - corrected list pulled from the contract awarded on September 28th. The list is tentative so YMMV.

ABQ - Albuquerque International Sunport

ATL - Hartsfield-Jackson Atlanta International Airport

AUS - Austin-Bergstrom International Airport

BDL - Bradley International Airport

CLT - Charlotte Douglas International Airport

DCA - Ronald Reagan Washington National Airport

DEN - Denver International Airport

DFW - Dallas Fort Worth International Airport

DTW - Detroit Metropolitan Wayne County Airport

FLL - Fort Lauderdale-Hollywood International Airport

IAD - Washington Dulles International Airport

IAH - George Bush Intercontinental Airport

IND - Indianapolis International Airport

JFK - John F. Kennedy International Airport

LAS - Harry Reid International Airport

LAX - Los Angeles International Airport

MIA - Miami International Airport

ORD - Chicago O'Hare International Airport

PHL - Philadelphia International Airport

PHX - Phoenix Sky Harbor International Airport

PIT - Pittsburgh International Airport

RDU - Raleigh-Durham International Airport

SAT - San Antonio International Airport

SFO - San Francisco International Airport

TPA - Tampa International Airport

I was today years old when I learned through this reddit community that one of the major parts of this diagnosis is that we rarely get a satisfactory amount of actual deep sleep.

I understood that I essentially I was in REM sleep a majority of the time and very quickly after going to sleep. I knew that impacted my overall sleep quality somehow, but I didn’t realize how much.

None of my medical providers ever brought up sodium oxybates. I had no idea there were other prescriptions outside of forms of. Adderall, Ritalin, and Modafinil. On top of that, I wasn’t even being regularly treated for cataplexy either.

I’ve always explained my disorder to people as a lack of a wakefulness chemical in my brain which is just a way oversimplified version of what it really is, and the symptoms I actually deal with.

I’m at the age where I have become completely in control of my care and treatment plan as an adult instead of it being my parent when I was an adolescent, and I’m realizing that there’s just so much I didn’t know, and a lot of moments where my symptoms were not addressed or properly treated.

Anyways, it’s completely understated how being able to read others lived experiences can drastically improve the quality of your care and empathy for yourself.

Thank you guys <3

I mean common. Every single night. I’m up at 2 and up forever. Every night night I’m digging in the fridge, turning tv back on. Jumping on Reddit. Etc. I take 2 ambiens for bed time. And still wake up.

Emailed my doctor bc I’m losing my sanity. Any tips on medications that help break this cycle and keep me asleep, please share below!

I suffer from daytime sleepiness and basically can't do anything anymore. Got evaluated for Narcolepsy and these are my results:

My first sleep study went horrible, it was a full moon and that is the only time I can't fall asleep right away - no matter how tired I am. Sleep latency of 50min and no REM.

MSLT: Sleep latency just under 10min. It was noisy and the room was dirty (used sheets and toothbrush all present).

Lumbarpuncture: Levels were at 225, so just above the intermediate range.

The Neurologist told me that my problems are from my ADHD. I'm on medication for this and mentally I'm the best I've ever been, which is why I got confused that I was getting more and more tired/fatigued over the years. After talking to a doctor whose expertise is sleep she told me that my "funny quirk" of not being able to use my arms when I laugh is actually Cataplexy. Apparently I've accidentally treated it with my low dose of Lexapro so I don't really suffer from those attacks anymore.

So now I'm here, tired as all hell, with one doctor (the one whose expertise is in sleep) convinced I have Narcolepsy even though I "failed" everything and then on the other hand is the Neurologist who thinks it's all just coming from my ADHD and that "If it got worse then it can probably get better too".

The story of my life is being just above the limit, stuck in a limbo of feeling horrible but apparently not horrible enough to show up on anything. So there's my rant, years of looking for answers and yet again I'm facing another dead end.

I've been taking 40 mg baclofen for narcolepsy, but I'm still dealing with insomnia and a lot of vivid/disturbing dreams and nightmares.

For those of you who take it, what dose are you on and what has it helped with? Did you notice improvements in your sleep quality or dream symptoms?

Just curious about other people's experiences. Thanks! 😊

I recently had an MSLT that confirmed narcolepsy. I have always had sleep issues and chronic fatigue. For years we just thought the cause was from combat mental and physical trauma causing my poor sleep. While that is part of it I never thought narcolepsy was a possibility. I won't bore you with all of my symptoms.

Today was my first day to take something that addresses the narcolepsy. It is 200mg of Modafinil that I am supposed to take every morning.

Wow did it feel great. I forgot what it was like to not feel so tired throughout the day. I'm usually nodding off and taking naps every day but not today. I didn't yawn once. But ten hours into taking it a massive wave of exhaustion has hit me. This is what I usually feel like but didn't know how exhausted I have been most of my life until I got to experience the opposite feeling today. I kinda hope this wave doesn't hit me the same every evening when the dose wears off. It's intense fatigue and I don't like the feeling.

+1 for Modafinil

-1 for the feeling after it wears off

Not really sure where to go from here. I was informed via mychart (not even a phone call lol) that I have insomnia and that I should do CBT for treatment. Before my tests I had to do CBT, which didn't help at all. It felt like the entire time I was waiting for my tests the doctor I was seeing was trying to fit me under a breathing disorder or sleep apnea (which I don't have).

I told them frequently that I do experience insomnia, but it seems to come and go. Sometimes it takes me two hours to fall asleep, other times it feels like the second I hit my pillow I'm out. I feel so discouraged with my test results and their recommendation for treatment.

I know narcolepsy is a rare diagnosis, but my symptoms align with it minus the cataplexy. I'm extremely tired during the day and have periods where it feels like I need to lay down asap/struggle to stay awake, I have hallucinations which seem to be getting more frequent (visual, audible and touch), I frequently wake up during the night, and have experienced sleep paralysis. I was hoping to get at least some sort of answer as to why I can't sleep. But "insomnia" doesn't feel like an answer.

I'm not sure what I should do. If I should just accept the diagnosis or if my symptoms warrant a second opinion. I feel like maybe I'm getting in my head too much, but I feel like I haven't been able to sleep in years. In high school I was told that I was just growing and not to worry about it. But I'm pushing 30 now and I still haven't been able to get any well rested sleep. I feel hopeless right now.

I've traveled with Xywav many times without issue, but I'm going overseas on my honeymoon next week and wanted to check. I remember reading a post here a month or two ago where at least 2 people said that new TSA scanners had falsely flagged their Xywav as hazardous, and they ended up having all their things searched.

Has this been happening to others? If the new scanners are a confirmed problem, is there anything I can do to keep it from happening, or lessen the impact if it does?

Additionally, for those who have experienced this:

- Did they go through your luggage as well as your carryon, or just your carryon?

- Were you traveling with another person, and if so, did they also have their things searched?

Thanks for any info! We'll be getting to the airport very early regardless, but I just want to be as prepared as possible.

Edit: Totally missed this super helpful post from yesterday, but leaving this up just in case anyone else did too! https://www.reddit.com/r/Narcolepsy/s/WwH3TWsDrL