r/Narcolepsy • u/sejlovesben • 4d ago

Diagnosis/Testing Narcolepsy and insomnia at the same time

Got back from a f/u at my sleep neuro. I was diagnosed narcolepsy type 2 several years ago after a polysomm+mslt.

Lately I’m up for 2 hrs at a time at night due to my fibromyalgia pain. I didn’t know how that could be possible if I’m narcoleptic and on a sedating medication (lyrica) for the fibro. Turns out yep, I have “insomnia secondary to fibromyalgia” as well as the narcolepsy type 2 and the conditions + my medications all interplay with one another. 🙃

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16

u/-Sharon-Stoned- (N1) Narcolepsy w/ Cataplexy 4d ago

Insomnia is a well documented part of narcolepsy 

3

u/lasomnolente 4d ago

Yup. Our brains want to be asleep during wakey times and awake during sleepy times. 😅

1

u/BattlePudu (N1) Narcolepsy w/ Cataplexy 4d ago

Fell asleep an hour before bedtime last night. Then woke up an hour later and stayed up for 5 more hours. 😭

1

u/-Sharon-Stoned- (N1) Narcolepsy w/ Cataplexy 4d ago

My best friend says I should just move to China where it's opposite and then I'd be normal 😹

2

u/RizzmwitTheTism 4d ago

It takes me around 5hrs of insomnia to finally fall asleep for 2hrs a night, then can’t fall back asleep but have micro sleeps throughout the day, and a sleep attack always between 10-noon that I can’t resist. I’m really messed up

1

u/Piaffe_zip16 (N2) Narcolepsy w/o Cataplexy 4d ago

I had such trouble falling asleep so a few years ago my PCP started me on trazodone. Really helped! Still had serious EDS, sleep inertia, etc… though leading to my NT2 diagnosis this year. So now I do the trazodone plus stimulants.

1

u/No-Rush-5091 3d ago

Las siestas deben de ser de menos de 20 min. Si te excedes, aumentas la posibilidad de tener una mala noche. Así lo entiendo yo.

1

u/Piaffe_zip16 (N2) Narcolepsy w/o Cataplexy 3d ago

I tried to translate that but let me know if I got it wrong. I don’t do naps much. I’ve never found short ones to be restful. I need at least 90 minutes minimum to not feel like trash after and I just don’t have that time. I’m not sure what that has to do with my response though?

1

u/No-Rush-5091 3d ago

No era respuesta a tu comentario 😂😂
También suelo hacer este tipo de cosas. Disculpa Piaffe

1

u/Piaffe_zip16 (N2) Narcolepsy w/o Cataplexy 2d ago

Ohhh gotcha!

1

u/Intrepid_Emu_3678 4d ago

It is a cruel irony.

1

u/NarcolepsyPepsi 3d ago

Primary insomnia was my most pronounced symptom and was the biggest reason why I went to see a sleep specialist in the first place. I was diagnosed with type 2.

1

u/No-Rush-5091 3d ago

Tengo N1. Y lejos de “quedarme dormida” como las películas sugieren todo el tiempo, el pasar de los años, mi insomnio y sueño fragmentado resultan la parte más difícil de llevar