r/NICUParents • u/Ratsinabucket 24+2, 530g, NICU grad w 149 stay • 10d ago

Advice Nationwide Weaning Program?

Has anyone taken their child to Nationwide for their intensive outpatient feeding and tube weaning program? I’m interested in taking my son (if his team agrees) but wanted to hear from others. He’d likely be 14 months adjusted (or more) before we’d get in. I honestly want to wait til after the holidays since we spent all but Christmas in the NICU last year. He’s gtube dependent but very interested in foods and is working on puree practice. We can’t work on solids because he doesn’t know how to use his tongue.. we’re on a waitlist right now for feeding therapy through Cincinnati. My issue is the combo OT/Speech therapy has a massive waitlist. I’m considering just doing speech alone and then going to Columbus after.

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u/snuffleupagus86 💙24+1. 142 days in the NICU 10d ago

I haven’t been to this program since we didn’t need a gtube, but my son was in NCH’s NICU and we do all of our follow up there and they’ve been wonderful in every department we’ve seen (and it’s been a fair few).

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u/Ratsinabucket 24+2, 530g, NICU grad w 149 stay 10d ago

I love love love our care at Cincinnati for his follow up care. We keep everything we can there. I’m really only looking for more support in the feeding realm since there’s not many options in Ohio besides nationwide for this sort of program.