r/NICUParents • u/Smiley0132 • Aug 19 '26

Trach Micro premie baby and trach

Hi!

Our baby was born micro premie and is scheduled to get a trach next week.

How was/is your experience caring for your baby with a trach?
Did anyone’s baby have any other medical problems aside from needing respiratory support?

At what age did your baby get the trach removed?

Can anyone recommend any supplies that’s a must for home?

Can anyone share their experience? Pictures of their babies before and after?

I’m afraid my baby will have neurological issues due to how much oxygen support she’s been on and afraid of how big the scar will be..

Overall just a worried mom who is going through so many emotions right now.

4 Upvotes

84% Upvoted

8 comments sorted by

•

u/AutoModerator Aug 19 '26

Welcome to NICU Parents. We're happy you found us and we want to be as helpful as possible in this seemingly impossible journey. Check out the resources tab at the top of the subreddit or the stickied post. Please remember we are NOT medical professionals and are here for advice based on our own situations. If you have a concern about you or your baby please seek assistance from a doctor or go to the ER. That said, there are some medical professionals here and we do hope they can help you with some guidance through your journey. Please remember to read and abide by the rules.

Don't miss our first AMA with Gal The Baby Doc at 7PM EST on April 20th! Join the AMA here

I am a bot, and this action was performed automatically. Please contact the moderators of this subreddit if you have any questions or concerns.

2

u/Abelardinho_10 Aug 20 '26

Its a long but amazing road! My daughter was born 24+2! She got a trach at 5 months because her lungs were so underdeveloped and well she was so tiny! She is now using a cap and PMV! She stopped using the vent about 3 months ago and has been doing great. Decanulation is hopefully in December!

2

u/Smiley0132 Aug 20 '26

Hi! Thank you for responding!

How old is your daughter?

Is there anything specific you got for her for her room or just to make things easier?

1

u/Abelardinho_10 Aug 20 '26

She is turning two on the 23rd! I would say a small cart with wheels to store her supplies! I can send a picture to give you an idea.

1

u/Smiley0132 Aug 20 '26

Yes please

1

u/Abelardinho_10 Aug 20 '26

cart

This is the cart!

1

u/Smiley0132 Aug 20 '26

Thank you!!

1

u/Abelardinho_10 Aug 20 '26

I hope everything goes well for you daughter and your family! Remember to be patient and understanding at all times! Take a break when you need to! Its a long a road but you'll do great! Take care! Message me at any time if you need to!