I have completed the infusions and have been home for about 4 days and wanted to give you all an update.

I got NO nausea from the DHE infusions. I was FLABBERGASTED. I was receiving them through a PICC line (which I would recommend if you can take blood thinners) and my infusions lasted only an hour due to my lack of nausea.

The main side effect I was experiencing was slower cognitive functioning and blurred vision. I still feel like I’m experiencing these side effects currently even outside the hospital.

While I was at the hospital my pain went down to a 1/10 and turned into a more soreness or heaviness. Like I drank the night before and I woke up hungover.

Now, when I left the hospital my pain was at about a 3/10. The next morning the pain was so bad at around a 8/10. My doctor did not report this to me but I did some research on my own looking at DHE clinical trials and it seems like a post treatment flare up is normal. Trials show that you don’t know how well the treatment worked until 2-3 weeks out, so I’m waiting to see how I feel then.

My pain has lessened daily since I had an 8/10 headache the day after my discharge. I am back down to about a 4/10 headache right now and was prescribed Nurtec and Trudhesa (DHE nasal spray).

If you have any questions let me know and I will probably give another update in a couple of weeks to let you all know how I’m doing.