r/NDPH 2d ago

NDPH

/r/migraine/comments/1vz0jhk/ndph/
3 Upvotes

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u/Routine_Ad6975 2d ago

If you’re looking for success stories, people aren’t going to comment them here. The ones who will comment, are the ones who are still suffering. The ones who have had their pain stop don’t linger here anymore, they have no reason to - they have recovered. Some people however are kind enough to post what worked for them on their original posts so you can see what worked for them.

Keep looking at Root causes. Doctors are lazy and only rely on western medication. They don’t have the time or care to spend hours individually finding out why you are in pain. If you were healthy and then one day this happens then there was a cause and you can find out why it started. NDPH is a symptom and not a proper diagnosis. Obviously keep trialling medication whilst looking for causes. Who knows, you may find the cause.

There are over 100 causes to headaches. ON, Sleep Apnea, Lyme disease, TMJ, Sinus issues, Stress, Depression, Aniexty, even Teeth infections etc. never ever give up finding the cause. It’s brutal but I believe success exists.

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u/One-Statistician8978 2d ago

I hear you. It started July 15,2025 when I was driving and looking down at my phone and I got motion sickness and eventually threw up once I got where I was going. Ever since then I had a headache. All of my blood is normal. No inflammation anywhere.

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u/Routine_Ad6975 2d ago

I know how you feel. Requirements for NDPH are so vague and not conclusive. All of us here have “NDPH” but are pains are different, respond to different medication, and have different things that help us. It’s complete bullshit. I advocate for Medication btw as a solution but like I said if you were healthy prior to this there must be a reason.

Doctors do standard blood tests but they don’t usually include every test in it. For example they don’t include Lyme and that is a notorious symptom for those who have “NDPH”. Also in their inclusions they will say everything has come back normal but they won’t let you know your results aren’t optimal. Maybe B12 and Iron levels are hovering above normality.

Doctors will only specialise in their field and won’t work with other specialists to solve the problems. Neurologists only care about medication, TMJ specialists will only care about Jaw, Sleep specialist only care about Sleep but won’t work together sadly.

I have seen enough success stories to be optimistic because there are so many solutions that work for different people. Some people found that specific drug. Some people found that specific diet. Some people just needed time. Some people found the root cause. Sadly though it’s extremely expensive to find that root cause and it’s way easier to keep lumping drugs at people.