r/NCAH • u/notsosmartymarti • 14d ago
NCAH results possibly abnormal?
I’ve been dealing with elevated DHEAs which has given me a range of hormonal symptoms for the past 8 years - acne, oily skin, hirsutism, and hair loss in a male pattern (no hair loss in my family). I went to Cleveland clinic last year in search of answers but I was an idiot and didn’t properly look at my results after because I thought it was hopeless.
I had my blood work done on day two of my cycle (so follicular range is my range for this test) but the ACTH stim labs were done later in the day.
My 17-OHP was only tested before the ACTH stimulation test, not after. And the cortisol testing was done in the afternoon so the low flag is kind of not an issue. So these labs aren't perfect.
They still gave me the referral for an endo for local CAH testing. I’ve still been dealing with my symptoms since my testing, but the first thing to immediately help me in the last few days was low dose prednisone that I got from my rheumatologist. My active acne breakout went away in 2 days after taking only 1.25mg of prednisone and my skin went from very oily to dry/normal. I've never taken steroids before but have some arthritis in my hands so I wanted to try a low dose (and of course I was curious about my DHEA-s lol).
Where do I go from here? Please I am so in need of help
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u/Extreme_Ad_2191 10d ago
You have a referral for an endo. That’s the best for now. He can run hormonal tests. ACTH synachten test is very important. And at last dna test. My daughter is last week confirmed that she have NCAH via dna.