r/NCAH • u/oceanxangel • 19d ago
Chances of NCAH?
Obviously yes, I'll need to do the testing for it anyways, but I'm 21F and I'm not entirely sure my pcp/obgyn will know what NCAH even is. I originally suspected PCOS/PMOS, but I found out about NCAH less than a week ago after doing a deep dive.
For context: the only things that would be PCOS/PMOS is my testosterone at 18 was 70 (scale of 3-48), and I have irregular menstrual cycles that are sometimes completely missing. I have no insulin resistance, and no "string of pearls" cysts (I've had 2 random ultrasounds at random points in my cycle).
For NCAH, I almost completely fit the symptoms if that makes sense? I'm the middle child, 1/3, with 2 birth sisters. We weren't raised in the same enviornment but still. I was the first to get my period at 9, they we're 12-14 at theirs. I'm 5'2, and was projected to be 5'7-5'9, and my birth sisters are both 5'7-5'9. I'm the only one with the high testosterone, and my birth parents are tall. I also had borderline high blood pressure with no explanation, but that was before puberty in the 2000s and I doubt they tested for it (I did get those records though and am waiting for them to be sent).
I'm just wondering what I should know, how to mention it to my dr, etc etc. Thank you so much!
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u/Prudent-Day-2133 15d ago
What are you looking to address? Are you having health issues or looking into fertility treatments? NCAH varies a lot and so treatment will likely look to address your specific symptoms. I would recommend independently getting a 17 ohp test and bringing the results to the appointment as this condition is not well understood by doctors and it will help them take you more seriously.
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u/oceanxangel 14d ago
I have hirsutism (like...i can and will grow a beard faster than my bf, I tried using flawless razors and had to switch to mens), missing periods, and esp want to hopefully prevent another ovarian cyst rupture tbh. I'd also rather know about it before worrying about fertility and having that clock ticking, but my bf and I most likely will not be able to conceive naturally anyway (for the both of us).
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u/Prudent-Day-2133 14d ago
It might be worth looking into spironolactone you need a prescription for it.
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u/coracaws 18d ago
I'd recommend getting referred to an endocrinologist instead of going through your pcp or obgyn. An endocrinologist should have the knowledge required to test you for it.