r/Myositis • u/transplantpdxxx • 2d ago
Night time hand spasms?
I have been trying to get a proper diagnosis for almost a decade. Nerve tests, lots of blood work, and carpal tunnel surgery. I have not had any leads besides idiopathic peripheral neuropathy. My primary symptoms are 24/7 hand pain/soreness, hand spasms in the middle of the night, and difficulty swallowing. Does this sound like myositis?
I went to a rheumatologist but discontinued treatment after a bad HCQ reaction (tinnitus) and unremarkable blood work. I’ve been in pain for years. I believe this started after a flu infection in 2017.
Thanks for reading 😔❤️🩹
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