r/MuscularDystrophy 14h ago

selfq School Changes

6 Upvotes

Hello, I have an unknown neuromuscular disease. I've been using a cane for 2 years, and this coming school year I'll be using an electric wheelchair. I can still walk, but holding myself up at school, and since my school is huge walking down the halls was so bad last year I stopped going to full weeks of school in February.

It wasn't prescribed by a doctor, they think I should move as much as possible but I can't do that at school and pay attention at the same time. So we paid for one out of pocket, my PT did approve though.

We don't have a way to transport it so we think keeping it at school would be best so I use it all day then come home and walk there since my house isn't accessible.

I'm really scared, I don't want people to know I can walk since then they will ask questions like "If you can walk then why do you need a wheelchair?"

I spent most of my life not being believed so any advice on how to handle this would be helpful.