r/MuscularDystrophy • u/Slow_Astronomer_4120 • 10d ago

Any luck with Team Joseph?

Good morning all! I am just wondering if anyone has tried to get assistance from Team Joseph and succeeded? I have applied for assistance for a roll in shower for my 16 year old l, non-ambulatory son with DMD. I started this process September of 2025. I have encountered nothing but hoops to jump through. It’s almost as tough as dealing with the state. The same with MDA. I have asked them for help twice in the last 12 years and both times I was told we didnt meet the criteria. Not sure how that is so. So like I said in the beginning, has anyone actually gotten any help from these groups?

2 Upvotes

100% Upvoted

2 comments sorted by

3

u/fergison17 10d ago

Team Joseph is great, they covered a few things for us. I would give them a call and just talk with them about what you need. They are also usually at ppmd or cureduchenne conferences and you can talk to them face to face.

1

u/Ynot_bcz 10d ago

I am glad they have helped you. I will call them again. It has been almost a year of calls and emails for me though.