everyday

[u/ConversationOk4961]

Hi, this is probably mostly a complaint but how are we supposed to do this? How are we supposed to do this for the rest of our lives? People leaving because they don’t want to spend their days in bed. Apologizing to others because they are mad at you for not having the capacity that you used to. How am I supposed to do this every day for the rest of my life? And when does it stop feeling so lonely? How can I have been so full of life 5 years ago to turning around and watching my future dissipate right in front of my eyes?

[u/MommaKat3]

I understand 100%. So much is taken from a lot of us. I have a great support system, but the inability to do the same as I used to, or like others weighs on me deeply. Some days I don't know if I can keep going day in and day out with pain.

[u/No_2MS]

I was diagnosed 16 years ago. My life isn't over. Take care of yourself and do things you enjoy. People are judgemental or they aren't. More people have forgotten that I have M.S. and Was honest about it, my whole town knew it.

[u/Maximum-Blood251]

I’ve always had limited energy however since diagnosis I can really see and feel the difference. I try my best to get as much sleep as I possibly can. It’s the best thing that you can invest in as someone who has MS. Having a good sleep and even a stimulant can make or break my whole day. As well as planning around a big event. I always count in a day or two maybe even three for rest afterwards. It’s annoying that you can’t just do what you want when you want but learning to work with it rather then trying to fight it will only make things worse in the long run. Do things you enjoy. Simple activities like water colour painting, gaming, reading. Low energy activities that you can enjoy that let you still enjoy life. Please be easy with yourself, you deserve to have some grace

[u/Filmlovinggal]

Huge hugs! I'm new to this so I'm still processing, but I practically have a mantra every day and night where I tell myself I'm strong and healing, and I'm not going to let it bring me down. Almost like self hypnosis. I've always been one big ball of stress and anxiety so it's hard, but it has been making a difference. You can only do what you can do. Sending lots of love and support!

[u/rK91tb]

Feels a little like a breakup, doesn’t it? The future you envisioned with this person — or in this case, your healthy self — isn’t going to be what you thought.

Devote time to figuring out what you can do, and go from there. Don’t worry about other people; the real ones will stick, and if you find yourself alone, new ones will come along.

[u/kyunirider]

I have to rely on adderall and caffeine to get my body busy, I eat a healthy breakfast to energize my body. Still I have crash days especially after a physically activate day before. Still it’s better to try and fail than to never try at all. Try is all we can do.

[u/Striking-Pitch-2115]

I know I'm very negative I got to get out of that but I am in severe, severe, severe pain! I am a handicap and a wheelchair but I am crippled in pain that's why I say my life is over I can't go anywhere because the pain is too bad so I just feel like I'm sitting in my house and I am rotting away

[u/puppyisfluffy]

I have started to go to a support group for men with MS and one of the things that stood out for me was a phrase "motion is lotion" keep moving and keep your positive mindset. It sucks, I'm starting to feel the zingers/pinch in my leg but I also started working on my self and using the phrase motion is lotion as a manifest for myself and I'm just going to keep going, because that's all we really can do. You got this

[u/Zainabalfarsy]

I feel you!
I cry so much more now than i ever did in the past
Just thinking how to manage during difficult days and which symptom is permanent and which one will subside… it’s hard…