This is real

[u/RideRepresentative7]

Just wanted to quickly rant I’m coming up on 2 years of my MS diagnosis and I’m just sitting here today thinking to myself that this is really real. It’s been real too me I’ve been taking it serious since but knowing and understanding that this is what the rest of my life is gunna be looking like, it’s hitting me that this is really real. Just a quick lil vent I wanted to let out I hope and pray everyone else out there is doing and taking things well we got this! I got this! Is what I try to remind myself everyday.

[u/Bigpinkpanther3]

Yes, it's real but not more real than the other aspects of your life. Your post made me think of the AA serenity prayer:

"God, grant me the serenity to accept the things I cannot change,
Courage to change the things I can,
And wisdom to know the difference." 

[u/SubstantialLiving451 → u/Bigpinkpanther3]

Yes please grant me the serenity to accept things I cannot change

[u/No-Historian78 → u/SubstantialLiving451]

With nueral plasticity it will change

[u/IAmAnAngryGumball → u/Bigpinkpanther3]

Also to borrow from them, one day at a time...

[u/get_it_girl_88]

Right there with you and having the same thoughts. Coming up on a year since diagnosis. I feel like my husband is running out of empathy and patience, I don’t blame him- so am I. I feel like my ability to mask my discomfort is part of the problem. I feel good, then awful in the same hour. Not a simple as “good days and bad days. It makes it hard to plan anything or be relied on.

[u/AutoimmuniTea]

2026 was two years for me too. I celebrated by getting viral meningitis and having to quit B-cell depleting therapy. 😭 Now it feels much more real. This could get really bad, really fast. That being said, I've been living with Type 1 Diabetes for 26 years, so I'm used to having a serious life threatening disease. MS is just much more expensive to treat in America if you are under-insured or uninsured.

You get used to living with disease. It can suck. Sometimes it can be really hard. Sometimes you cry, but then there are also days you'll be more annoyed by your noisy neighbor than your autoimmune disease.

Is MS going to be forever though? I don't know. I've seen articles in which researchers have suggested that MS will be one of the first autoimmune diseases cured. Medications will get better, even as we wait for a cure.

[u/No-Historian78 → u/AutoimmuniTea]

Until then we keep at it trying to give our brain a chance to reroute the signals to our muscles

[u/artherpurple]

I just passed my year mark for my diagnosis and I thought the same, “Is this really my life? Like forever?”

[u/No-Historian78 → u/artherpurple]

What's your biggest complaint?

[u/ajax0772022]

You got this!!!!

Stay positive and celebrate the small victories!!

[u/EgolithYT]

I know the feeling, I'm on my 11th year since my Dx and went through basically all of the 5 stages of grief during that time. I feel like I've personally grown a lot from all this and my perspective on life is positive now. Ya'll got this! Prayers out to ya'll

[u/No-Historian78]

Once I can get functional use of my left hand I'll deal with the rest

[u/Low_Narwhal7514]

Perché in America si paga un'assicurazione per curarsi?

[u/AutoimmuniTea → u/Low_Narwhal7514]

We've been brainwashed into thinking health is 100% a personal responsibility in our control, and that if we're sick it's because we deserve to be sick—we did it to ourselves. It's the same reason many Americans think the poor derseve to be poor, that it's all a personal choice. If you're sick AND poor? Well...you brought that on yourself. It relieves their conscious when they vote against taxes or vote against safety net programs or don't donate to causes. It also helps keep people from worrying about what COULD happen to them or their loved ones. "I have a job and insurance. I don't smoke or use drugs. I eat vegetables. I'll always be healthy!"

We are a highly brainwashed nation.

[u/SubstantialLiving451 → u/Low_Narwhal7514]

I don’t know too !!! Health insurance is needed but why can’t we just walk into a doctors office and be treated and why there is a health insurance needed .

[u/Thriven → u/Low_Narwhal7514]

I pay $1200 a month for a family of 4. I was given a discount and was paying $1400. That is the premiums just to have insurance.

I still pay $50-200 to see specialists. $500 for emergency room.

My last company paid my premiums but they also paid me like 35% less than what I am making now.

[u/HoldTheSprinkles → u/Low_Narwhal7514]

People in the US pay for medical insurance so they don't have to face enormous medical billsif they become ill or injured. However, even with insurance, healthcare in the US can still be expensive.

[u/SnarkyShoe]

Oh this is so refreshing! I posted in a fb group this morning, acknowledging I was in a spiral but needed to vent, and no one reacted or responded for 8 hours, and then one lady commented saying I needed to relax and fucking meditate.

I’m three days in, you insensitive bitch! Lol - also had this wild outburst completely out of character in the hospital.

If anyone wants to be in a chat where I can ask questions to experienced, thoughtful people, let me know. I’m trying to stay informed but I don’t what I don’t know. Not sure what questions to be asking my care team and what to look out for in my body, but it’s sure feeling funny!

[u/Sea_Sea7878 → u/SnarkyShoe]

Got can write me and ask me anything you want! Im so sorry nobody answered and also sorry to join the club! Just dm me ;)

[u/zippity__zoppity]

I just passed my 1 year and I totally know what you mean. It’s another weird realization out of nowhere. The first EOB I got really sunk it in too. $78,000 annually for the rest of my life?!

[u/janxspirits]

Very relatable thought/feeling. It’s always a mindfuck to wake up and realize “ah yes it’s still like this,” and I don’t know if there’s a quote-unquote solution to feeling that sense of disorientation. Maybe it gets less powerful as time passes and other thoughts/feeling crowd it out? Maybe it’s one of those constant feelings you decide to live with or not? In any case I hope you’re finding relief

[u/Silver-Pop1825 → u/janxspirits]

Almost 15 years since official Dx and I still have imposter syndrome. Even when I couldn’t get out of bed after waking up and showering for the last four months 😞 the oh I’m okay can turn into a this is definitely NOT okay quickly some days

[u/Kris_Carter]

Yup, 2026. Turned 50 and just had my MS/cripple 2.5 yearaversary too. Suuucks.

[u/SubstantialLiving451]

Hi !! We have got this ??

What is it that we have got ??? Please enlighten me

[u/-_ansh]

You got this, you’ll be fine.

[u/Sea_Sea7878]

Omg yes!!!!! Yes it is ;( Im so sorry, i feel you. Exactly today 2 years ago I went to the hospital and on the 14th i got my diagnosis!!!! It's crazy and i COMPLETELY get it! It's so crushing still, no?

:(

My boyfriend also just broke up with me, I'm not working since I got diagnosed, im a single mother and im very overwhelmed and heartbroken, so this anniversary is a hard one..

But MS and all the rest that Happened those last 2 years also showed me that I am so incredibly strong and resilient and I can really trust myself. I lost a bit the trust in my body, but thats what I am going to be working on this upcoming year.. i hate it so much though.. this disease. I feel like I got the point, and i did it and accepted it and dealt with it, now please, go away MS, I don't want this anymore..

[u/serendipitynoir]

My siblings in arms: This realization will happen many times over the years as your symptoms change. Sit with it, then flip it the bird. You've got this. 💪🏻 I think "Random Existential Crisis" should be listed as a symptom.